Krishnan Shilpa, Pappadis Monique R, Weller Susan C, Stearnes Marsja, Kumar Amit, Ottenbacher Kenneth J, Reistetter Timothy A
From the Department of Occupational Therapy (SK, TAR), Division of Rehabilitation Sciences (MRP, KJO, TAR), Preventive Medicine and Community Health (SCW), and Sealy Center on Aging (MS, KJO, TAR), University of Texas Medical Branch, Galveston, Texas; and Department of Health Services, Policy and Practice, Brown University, Providence, Rhode Island (AK).
Am J Phys Med Rehabil. 2017 Jul;96(7):487-505. doi: 10.1097/PHM.0000000000000717.
Caregivers usually are not involved while planning the stroke survivor's medical and rehabilitation goals and interventions. This review aimed to identify the needs of stroke survivors as perceived by their caregivers.
A literature search from 2003 to 2014 was conducted using Medline, CINAHL, PsychINFO, and Google Scholar. Sixty-six studies were included. Most studies excluded did not encompass caregivers' perspectives. Four reviewers screened the titles, abstracts, and full texts of the articles for inclusion. The data extracted from these studies were synthetized into metathemes.
Fifty-two qualitative, ten quantitative survey, and four mixed-methods studies were included in the final synthesis. The studies came from 11 countries. The data synthesis produced following three metathemes: (a) body functional needs, including psychological function, physical function, cognitive function, and uncertainty related to function; (b) activity and participatory needs, including healthy lifestyle, physical activities, speech, independence, cognitive activities, and uncertainty related to activities and participation; and (c) environmental needs, encompassing support, services, safety, accommodation and accessibility, and uncertainty related to environmental factors.
This scoping review identified a range of needs of stroke survivors as perceived by their caregivers. Incorporating the caregiver's preferences and values into clinical decisions may improve outcomes among stroke survivors.
在规划中风幸存者的医疗和康复目标及干预措施时，照顾者通常未参与其中。本综述旨在确定照顾者所感知到的中风幸存者的需求。
使用Medline、CINAHL、PsychINFO和谷歌学术对2003年至2014年的文献进行检索。纳入了66项研究。大多数被排除的研究未涵盖照顾者的观点。四位评审员对文章的标题、摘要和全文进行筛选以确定是否纳入。从这些研究中提取的数据被综合成元主题。
最终综合分析纳入了52项定性研究、10项定量调查研究和4项混合方法研究。这些研究来自11个国家。数据综合分析产生了以下三个元主题：（a）身体功能需求，包括心理功能、身体功能、认知功能以及与功能相关的不确定性；（b）活动和参与需求，包括健康的生活方式、体育活动、言语、独立性、认知活动以及与活动和参与相关的不确定性；（c）环境需求，包括支持、服务、安全、住宿和可达性以及与环境因素相关的不确定性。
本范围综述确定了照顾者所感知到的中风幸存者的一系列需求。将照顾者的偏好和价值观纳入临床决策可能会改善中风幸存者的预后。
