Hinds Pamela S, Burghen Elizabeth A, Pritchard Michele
St. Jude Children's Research Hospital, Memphis, Tennessee 38105-2794, USA.
West J Nurs Res. 2007 Jun;29(4):448-65. doi: 10.1177/0193945906295533.
Improving our ability to prevent or diminish suffering in dying children and adolescents and their families is dependent on the completion of high-quality pediatric end-of-life studies. The purpose of this article is to provide useful evidence-based strategies that have been used to implement and complete clinically useful pediatric end-of-life studies in oncology. The article describes specific peer-review and methodological challenges and links those to evidence-based solutions. The challenges and solutions described in this article are from eight end-of-life studies involving pediatric oncology patients. It is hoped that the solutions described here will benefit others in their efforts to implement pediatric end-of-life studies so that clinically useful findings will result and will improve the care of dying children and adolescents.
提高我们预防或减轻临终儿童和青少年及其家庭痛苦的能力，取决于高质量儿科临终研究的完成。本文旨在提供基于证据的有用策略，这些策略已被用于开展和完成肿瘤学领域具有临床实用性的儿科临终研究。本文描述了具体的同行评审和方法学挑战，并将其与基于证据的解决方案联系起来。本文所述的挑战和解决方案来自八项涉及儿科肿瘤患者的临终研究。希望这里描述的解决方案能有助于其他人开展儿科临终研究，从而得出具有临床实用性的结果，并改善对临终儿童和青少年的护理。
