• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

泄殖腔外翻患者的精神病理学、心理社会、性别及认知结果

Psychopathology, psychosocial, gender and cognitive outcomes in patients with cloacal exstrophy.

作者信息

Mukherjee Bipasha, McCauley Elizabeth, Hanford Russell B, Aalsma Matthew, Anderson Amy M

机构信息

University of Washington, Seattle Children's Hospital, Seattle, Washington, USA.

出版信息

J Urol. 2007 Aug;178(2):630-5; discussion 634-5. doi: 10.1016/j.juro.2007.03.144. Epub 2007 Jun 13.

DOI:10.1016/j.juro.2007.03.144
PMID:17570426
Abstract

PURPOSE

Psychological functioning, as reflected in psychopathology, psychosocial functioning, gender identity, gender role and cognitive abilities, was examined in a sample of patients with cloacal exstrophy.

MATERIALS AND METHODS

Nine participants 11 to 37 years old completed the evaluation. Standardized measures were used and participant responses were compared to the norms of the various instruments. Gender reassigned participants with cloacal exstrophy were compared with nonassigned participants with cloacal exstrophy. Mean differences between the 2 groups were calculated using the t test.

RESULTS

Overall the participants with cloacal exstrophy reported good psychological functioning. Significant differences between reassigned and nonassigned participants were found in the area of depression. All participants had a stable gender identity. XY females showed more male-typical gender roles. There were no significant group differences on cognitive assessments. Reassigned and nonassigned participants did not differ in IQ.

CONCLUSIONS

Although being born with cloacal exstrophy puts patients at risk for psychopathology and psychosocial problems, it does not necessarily mean that these problems will develop. With the appropriate support these patients can have remarkably well adjusted lives.

摘要

目的

在泄殖腔外翻患者样本中,对心理病理学、心理社会功能、性别认同、性别角色和认知能力所反映的心理功能进行研究。

材料与方法

9名年龄在11至37岁之间的参与者完成了评估。使用了标准化测量方法,并将参与者的回答与各种工具的常模进行比较。将接受性别重新分配的泄殖腔外翻参与者与未接受性别重新分配的泄殖腔外翻参与者进行比较。使用t检验计算两组之间的平均差异。

结果

总体而言,泄殖腔外翻参与者报告心理功能良好。在抑郁方面,接受性别重新分配和未接受性别重新分配的参与者之间存在显著差异。所有参与者都有稳定的性别认同。XY女性表现出更多男性典型的性别角色。在认知评估方面,两组之间没有显著差异。接受性别重新分配和未接受性别重新分配的参与者在智商方面没有差异。

结论

虽然出生时患有泄殖腔外翻会使患者面临心理病理学和心理社会问题的风险,但这并不一定意味着这些问题会出现。在适当的支持下,这些患者可以过上非常适应良好的生活。

相似文献

1
Psychopathology, psychosocial, gender and cognitive outcomes in patients with cloacal exstrophy.泄殖腔外翻患者的精神病理学、心理社会、性别及认知结果
J Urol. 2007 Aug;178(2):630-5; discussion 634-5. doi: 10.1016/j.juro.2007.03.144. Epub 2007 Jun 13.
2
Long-term adjustment issues in patients with exstrophy.膀胱外翻患者的长期适应问题。
J Urol. 1998 Oct;160(4):1471-4.
3
Management of cloacal exstrophy.
Adv Exp Med Biol. 2002;511:267-70; discussion 270-3. doi: 10.1007/978-1-4615-0621-8_16.
4
Psychosocial and psychosexual development in childhood and adolescence within the exstrophy-epispadias complex.膀胱外翻-尿道上裂综合征患儿及青少年的心理社会和性心理发育
J Urol. 2005 Sep;174(3):1094-8. doi: 10.1097/01.ju.0000169171.97538.ed.
5
Psychosocial screening at paediatric BEEC clinics: a pilot evaluation study.儿科蜜蜂诊所的社会心理筛查:一项试点评估研究。
J Pediatr Urol. 2015 Apr;11(2):79.e1-6. doi: 10.1016/j.jpurol.2014.10.013. Epub 2015 Feb 26.
6
A preliminary investigation into quality of life, psychological distress and social competence in children with cloacal exstrophy.泄殖腔外翻患儿生活质量、心理困扰及社会能力的初步调查
J Urol. 2003 May;169(5):1850-3. doi: 10.1097/01.ju.0000062480.01456.34.
7
Exstrophy in the adolescent and young adult population.青少年及青年人群中的膀胱外翻。
Semin Pediatr Surg. 2011 May;20(2):109-12. doi: 10.1053/j.sempedsurg.2010.12.006.
8
Somatic function, mental health and psychosocial functioning in 22 adolescents with bladder exstrophy and epispadias.22例膀胱外翻和尿道上裂青少年的躯体功能、心理健康及社会心理功能
J Urol. 1998 May;159(5):1684-9; discussion 1689-90. doi: 10.1097/00005392-199805000-00092.
9
Gender assignment for newborns with 46XY cloacal exstrophy: a 6-year followup survey of pediatric urologists.46XY 型会阴直肠外翻新生儿的性别指定:对小儿泌尿科医生的 6 年随访调查。
J Urol. 2011 Oct;186(4 Suppl):1642-8. doi: 10.1016/j.juro.2011.03.101.
10
Gender-associated differences in the psychosocial and developmental outcome in patients affected with the bladder exstrophy-epispadias complex.膀胱外翻-尿道上裂复合症患者心理社会和发育结局中的性别相关差异。
BJU Int. 2006 Feb;97(2):349-53. doi: 10.1111/j.1464-410X.2005.05910.x.

引用本文的文献

1
Management of High Urogenital Sinus in Adults: A Scoping Review.成人高位泌尿生殖窦的管理:一项范围综述
Medicina (Kaunas). 2025 Jan 22;61(2):191. doi: 10.3390/medicina61020191.
2
Updates on the Care of Cloacal Exstrophy.泄殖腔外翻的治疗进展
Children (Basel). 2024 May 2;11(5):544. doi: 10.3390/children11050544.
3
An Interdisciplinary Approach to Müllerian Outflow Tract Obstruction Associated with Cloacal Malformation and Cloacal Exstrophy.一种针对与泄殖腔畸形和泄殖腔外翻相关的苗勒管流出道梗阻的跨学科方法。
J Clin Med. 2022 Jul 28;11(15):4408. doi: 10.3390/jcm11154408.
4
Treatment guidelines for persistent cloaca, cloacal exstrophy, and Mayer-Rokitansky-Küster-Häuser syndrome for the appropriate transitional care of patients.持续性肛膜闭锁、肛膜外翻和 Mayer-Rokitansky-Küster-Häuser 综合征的治疗指南,以实现患者的适当过渡性护理。
Surg Today. 2019 Dec;49(12):985-1002. doi: 10.1007/s00595-019-01810-z. Epub 2019 Apr 22.
5
The current profile of persistent cloaca and cloacal exstrophy in Japan: the results of a nationwide survey in 2014 and a review of the literature.日本持续性泄殖腔和泄殖腔外翻的现状:2014年全国性调查结果及文献综述
Pediatr Surg Int. 2017 Apr;33(4):505-512. doi: 10.1007/s00383-016-4053-4. Epub 2017 Jan 5.
6
Multimodality Renal Failure in a Patient with OEIS Complex.一名患有OEIS综合征患者的多模态肾衰竭
AJP Rep. 2015 Oct;5(2):e161-4. doi: 10.1055/s-0035-1554799. Epub 2015 Jun 12.