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自闭症和智力障碍儿童的兄弟姐妹所受的社会心理影响:一项基于人群的研究。

Psychosocial effects on siblings of children with autism and mental retardation: a population-based study.

作者信息

Bågenholm A, Gillberg C

机构信息

Department of Child and Adolescent Psychiatry, University of Göteborg, Sweden.

出版信息

J Ment Defic Res. 1991 Aug;35 ( Pt 4):291-307. doi: 10.1111/j.1365-2788.1991.tb00403.x.

Abstract

The probands of this study were 60 children and young adults between 5 and 20 years of age, 20 of whom had siblings with autism, 20 of whom had siblings with mental retardation, and 20 of whom had siblings who were free of handicap. The three proband groups were matched for gender, birth order and socioeconomic status. The children were questioned about their sibling relationships and about particular problems they faced concerning their handicapped brothers or sisters and about problems concerning themselves. Parents were interviewed about the healthy child's behaviour and social adjustment. Mothers completed the Eysenck Personality Inventory concerning themselves. Siblings of handicapped children and especially siblings of children with autism were more concerned about the future. They also felt lonely more often and many of them had peer problems. They often regarded their handicapped siblings as a burden. They tended to have only one sibling. Siblings often did not know why their handicapped brother or sister was different from other children. There were more behaviour disturbances in the siblings of handicapped children and mothers with a child with autism reported more 'stressful events'. There were no differences as regards the personality of the mothers and the self-concept of the children between the three groups.

摘要

本研究的先证者为60名5至20岁的儿童和青少年,其中20人的兄弟姐妹患有自闭症,20人的兄弟姐妹患有智力障碍,20人的兄弟姐妹无残疾。这三组先证者在性别、出生顺序和社会经济地位方面相匹配。研究人员询问了这些孩子关于他们与兄弟姐妹的关系,以及他们在面对有残疾的兄弟姐妹时所遇到的特殊问题和关于他们自己的问题。研究人员还就健康孩子的行为和社会适应情况对家长进行了访谈。母亲们完成了关于她们自己的艾森克人格问卷。残疾儿童的兄弟姐妹,尤其是自闭症儿童的兄弟姐妹更担心未来。他们也更常感到孤独,其中许多人存在同伴问题。他们常常将自己有残疾的兄弟姐妹视为负担。他们往往只有一个兄弟姐妹。兄弟姐妹常常不知道他们有残疾的兄弟姐妹为何与其他孩子不同。残疾儿童的兄弟姐妹中存在更多行为障碍,而有自闭症孩子的母亲报告了更多“压力事件”。三组之间母亲的性格和孩子的自我概念没有差异。

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