Macq Jean, Torfoss Ted, Getahun Haileyesus
School of Public Health, Université Libre de Bruxelles, Brussels, Belgium.
Trop Med Int Health. 2007 Jul;12(7):873-85. doi: 10.1111/j.1365-3156.2007.01858.x.
To review the available published and non-published literature on patient empowerment in tuberculosis (TB) control, describe what it entails, identify possible trends and conclusions, and suggest areas both for informing policy makers and for orienting further research.
We searched MEDLINE and PSYCINFO databases, used World Wide Web research tools and included conference abstracts and specific project reports.
Experience shows that operational definitions, potential barriers towards empowerment and contextual issues need to be considered. Four types of experiences were reported: (1) enabling patients to take more responsibility for their health, especially regarding adherence to treatment, (2) organizing TB patients into groups and clubs, (3) building patient-centred care in TB and general health services, and (4) using TB patients' advocacy skills to improve TB control.
Patient empowerment conceptions through interventions and studies should primarily involve TB patients themselves. Patients' activism--their role, the shape it takes and resulting effects--is insufficiently documented.
回顾已发表和未发表的关于结核病（TB）控制中患者赋权的文献，描述其内涵，确定可能的趋势和结论，并提出可为政策制定者提供信息及指导进一步研究的领域。
我们检索了医学文献数据库（MEDLINE）和心理学文摘数据库（PSYCINFO），使用了万维网研究工具，并纳入了会议摘要和具体项目报告。
经验表明，需要考虑操作定义、赋权的潜在障碍和背景问题。报告了四种类型的经验：（1）使患者对自身健康承担更多责任，尤其是在坚持治疗方面；（2）将结核病患者组织成团体和俱乐部；（3）在结核病及一般卫生服务中建立以患者为中心的护理；（4）利用结核病患者的宣传技能改善结核病控制。
通过干预和研究形成的患者赋权概念应主要涉及结核病患者自身。患者的行动主义——他们的角色、形式及产生的影响——记录不足。
