Rochette Annie, Desrosiers Johanne, Bravo Gina, Tribble Denise St-Cyr, Bourget Annick
School of Rehabilitation, Faculty of Medicine, University of Montreal, Montreal, QC, Canada.
Cerebrovasc Dis. 2007;24(2-3):255-60. doi: 10.1159/000104487. Epub 2007 Jun 28.
No comprehensive data are available on the impact of stroke on the spouse's participation level. The purpose of this study was to document changes in participation level over time and explore associations between changes in participation level, burden and depressive symptoms for spouses of people who had had a first stroke.
Participants were spouses recruited in the first 2 weeks after admission of individuals with a first stroke to acute care. Prestroke measures (T0) were collected at recruitment, simultaneously with the first measure (T1); further measures were collected 6 months after the stroke event (T2). Participation level was measured with the LIFE-H, perceived burden with the Caregiver Strain Index and depressive symptoms using the Beck Depression Inventory (BDI).
Mean age of participants (n = 54) was 69 years (SD 10.9) and the majority were female (75.9%). Changes in participation include small but significant increases at T1 for the nutrition (effect size, ES, 0.34) and responsibilities (ES 0.22) domains, and large significant persistent decreases at T2 compared to T0 were found for personal relationships (ES 0.83), employment (ES 0.63) and recreation (ES 0.93). Changes in these last three participation domains are associated with a higher Caregiver Strain Index score (p < 0.01) but not with the BDI.
Participation domains mostly affected for spouses after stroke were personal relationships, employment and recreation which could be addressed by clinicians in their provision of support.
目前尚无关于中风对配偶参与度影响的全面数据。本研究的目的是记录随时间推移参与度的变化，并探讨首次中风患者配偶的参与度变化、负担与抑郁症状之间的关联。
参与者为首次中风患者入住急性护理机构后前两周招募的配偶。在招募时收集中风前测量数据（T0），同时收集首次测量数据（T1）；在中风事件发生6个月后收集进一步的测量数据（T2）。使用生活-家庭版（LIFE-H）测量参与度，使用照顾者压力指数测量感知负担，使用贝克抑郁量表（BDI）测量抑郁症状。
参与者（n = 54）的平均年龄为69岁（标准差10.9），大多数为女性（75.9%）。参与度的变化包括在T1时营养（效应量，ES，0.34）和责任（ES 0.22）领域有小但显著的增加，与T0相比，在T2时个人关系（ES 0.83）、就业（ES 0.63）和娱乐（ES 0.93）领域有大且显著的持续下降。后三个参与领域的变化与较高的照顾者压力指数得分相关（p < 0.01），但与BDI无关。
中风后配偶受影响最大的参与领域是个人关系、就业和娱乐，临床医生在提供支持时可对此加以关注。
