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超越生存:儿童癌症后的生活质量与随访

Beyond survival: quality of life and follow-up after childhood cancer.

作者信息

Eiser Christine

机构信息

Department of Psychology, University of Sheffield, Sheffield, UK.

出版信息

J Pediatr Psychol. 2007 Oct;32(9):1140-50. doi: 10.1093/jpepsy/jsm052. Epub 2007 Jul 20.

DOI:10.1093/jpepsy/jsm052
PMID:17644535
Abstract

OBJECTIVES

To discuss (a) the impact of late physical and psychological effects on quality of life (QOL) among survivors of childhood cancer, (b) the rationale for providing follow-up care, and (c) potential value for survivors.

METHODS

Research related to four areas was summarized: (a) the late physical and psychological effects experienced by survivors and possible impact on health-related QOL, (b) assessment of QOL, (c) rationale for offering follow-up, and (d) assessment of its value to survivors.

RESULTS

Evaluation of follow-up can include identification and treatment of second cancers, but these are rarely identified in clinic. Evaluation, therefore, needs to emphasize value for survivors and can include improved QOL, disease information, screening attendance, and lifestyle behaviors especially smoking.

CONCLUSIONS

Multi-disciplinary models of follow-up are required to address the range of effects identified after childhood cancer. Systematic assessment of QOL should be an integral part of follow-up in order to facilitate communication and broaden the scope of the consultation.

摘要

目的

探讨(a)儿童癌症幸存者后期身体和心理影响对生活质量(QOL)的影响,(b)提供后续护理的基本原理,以及(c)对幸存者的潜在价值。

方法

总结了与四个领域相关的研究:(a)幸存者经历的后期身体和心理影响以及对健康相关生活质量的可能影响,(b)生活质量评估,(c)提供后续护理的基本原理,以及(d)评估其对幸存者的价值。

结果

后续护理的评估可包括识别和治疗二次癌症,但在临床中很少能识别出来。因此,评估需要强调对幸存者的价值,可包括改善生活质量、疾病信息、筛查参与情况以及生活方式行为,尤其是吸烟行为。

结论

需要多学科的后续护理模式来应对儿童癌症后所发现的一系列影响。生活质量的系统评估应成为后续护理的一个组成部分,以便促进沟通并拓宽咨询范围。

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