Cartwright Colleen, Onwuteaka-Philipsen Bregje D, Williams Gail, Faisst Karin, Mortier Freddy, Nilstun Tore, Norup Michael, van der Heide Agnes, Miccinesi Guido
Aged Services Learning & Research Collaboration, Southern Cross University, Coffs Harbour, NSW, Australia.
Palliat Med. 2007 Jun;21(4):295-303. doi: 10.1177/0269216307079063.
A major issue in the care of terminally ill patients is communication and information provision. This paper reports the extent to which physicians in Australia, Belgium, Denmark, Italy, the Netherlands, Sweden and Switzerland discuss topics relevant to end of life care with terminally ill patients and their relatives (without first informing the patient), and possible associations between physician-specific characteristics and such discussions. Response rates to the postal survey ranged from 39% to 68% (n =10139). Physicians in most of the countries except Italy ;in principle, always' discuss issues related to terminal illness with their patients but not with patients' relatives without first informing the patient, unless the relatives ask. Cross-national differences remained strong after controlling for physician characteristics. The majority of physicians appeared to support the principle of patient-centred care to terminally ill patients, consistent with palliative care philosophy and with the law and/or professional guidelines in most of the countries studied.
临终患者护理中的一个主要问题是沟通与信息提供。本文报告了澳大利亚、比利时、丹麦、意大利、荷兰、瑞典和瑞士的医生在未事先告知患者的情况下，与临终患者及其亲属讨论与临终护理相关话题的程度，以及医生特定特征与此类讨论之间可能存在的关联。邮寄调查的回复率在39%至68%之间（n = 10139）。除意大利外，大多数国家的医生原则上总是与患者讨论与绝症相关的问题，但在未事先告知患者的情况下，不会与患者亲属讨论，除非亲属主动询问。在控制了医生特征后，跨国差异仍然很大。大多数医生似乎支持以患者为中心的临终患者护理原则，这与大多数所研究国家的姑息治疗理念以及法律和/或专业指南相一致。
