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卵巢癌复发——处于边缘状态的生活。

Recurrence of ovarian cancer-living in limbo.

作者信息

Ekwall Ewa, Ternestedt Britt-Marie, Sorbe Bengt

机构信息

Department of Gynecologic Oncology, University Hospital, Sweden.

出版信息

Cancer Nurs. 2007 Jul-Aug;30(4):270-7. doi: 10.1097/01.NCC.0000281729.10362.3a.

Abstract

Few studies have shed light on women's life situation after being informed of having recurrent ovarian cancer. The present study aimed to elucidate women's experiences of living with this knowledge. Interviews were conducted with 12 women who were undergoing or had just completed chemotherapy, 5 to 10 months after learning of the recurrence. Data were collected and analyzed based on a life world perspective using a descriptive phenomenological method. The women's experiences are described via 3 key constituents: being denied one's future while simultaneously hoping to be able to delay the cancer's advancement, feeling alienated from both oneself and one's surroundings, and being responsible. The key constituents were integrated into the structure "living in limbo." The women lived on the threshold to the unknown. They were preparing themselves both for a continued life and for death. "Living in limbo" can be described as a phase of a health-illness transition characterized by loneliness. The vulnerable position and existential struggle of these women should be focused upon in nursing. The sensitive dialogue is essential in these cases.

摘要

很少有研究揭示女性在得知自己患有复发性卵巢癌后的生活状况。本研究旨在阐明女性在知晓这一情况后的生活经历。对12名正在接受或刚刚完成化疗的女性进行了访谈,她们是在得知复发后的5至10个月接受访谈的。基于生活世界视角,采用描述性现象学方法收集和分析数据。女性的经历通过三个关键要素来描述:在希望能够延缓癌症进展的同时被剥夺了未来,感到与自己和周围环境疏离,以及承担责任。这些关键要素被整合到“处于边缘状态生活”的结构中。这些女性生活在未知的边缘。她们既在为继续生活做准备,也在为死亡做准备。“处于边缘状态生活”可被描述为以孤独为特征的健康 - 疾病转变阶段。在护理中应关注这些女性的脆弱处境和生存挣扎。在这些情况下,敏感的对话至关重要。

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