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理解在死亡阴影下的生活:适应复发性乳腺癌疾病。

Making sense of living under the shadow of death: adjusting to a recurrent breast cancer illness.

作者信息

Kenne Sarenmalm Elisabeth, Thorén-Jönsson Anna-Lisa, Gaston-Johansson Fannie, Ohlén Joakim

机构信息

University of Gothenburg, Gothenburg, Sweden.

出版信息

Qual Health Res. 2009 Aug;19(8):1116-30. doi: 10.1177/1049732309341728.

DOI:10.1177/1049732309341728
PMID:19638604
Abstract

Women with recurrent breast cancer face many difficulties and challenges, from clinical symptoms of disease progression and treatment to a range of emotional responses. Guided by grounded theory methodology, we explored the main concerns of women with recurrent breast cancer, and how they were dealing with their situations. Data were collected from 40 in-depth interviews with 20 women diagnosed with recurrent breast cancer. The core category illustrated the process of "making sense of living under the shadow of death," and was based on the women's experiences of adjusting to living with a persistent life-threatening illness. Confronting a recurrence of breast cancer was a life-altering event. Moving through a difficult and challenging time, women eased their distress by letting go of losses and reassessing important values. Through a personal transition women transcended living with a life-threatening illness. These findings emphasize the importance of recognizing existential distress in clinical practice.

摘要

复发性乳腺癌女性面临诸多困难与挑战,从疾病进展的临床症状、治疗到一系列情绪反应。在扎根理论方法的指导下,我们探究了复发性乳腺癌女性的主要担忧,以及她们如何应对自身状况。数据来自对20名被诊断为复发性乳腺癌的女性进行的40次深度访谈。核心类别阐释了“在死亡阴影下领悟生活”的过程,该过程基于这些女性适应患有持续性危及生命疾病的经历。面对乳腺癌复发是一个改变人生的事件。在度过艰难且具有挑战性的时期时,女性通过放下失去的东西并重新评估重要价值观来缓解痛苦。通过个人转变,女性超越了患有危及生命疾病的生活状态。这些发现强调了在临床实践中认识到存在性痛苦的重要性。

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