White Colin Thomas, Trnka Peter, Matsell Douglas George
Division of Nephrology, Department of Pediatrics, British Columbia Children's Hospital, University of British Columbia, Faculty of Medicine, Vancouver, British Columbia, Canada.
Clin J Am Soc Nephrol. 2007 Jul;2(4):847-57. doi: 10.2215/CJN.04021206. Epub 2007 Jun 6.
Ten-year survival of all children who initiate dialysis at any age now approaches 70%, and in the older child this number is closer to 80%. These children will live with chronic kidney disease and its myriad of associated comorbidities during and throughout their childhood. Their care is complex and requires both teamwork and careful attention paid to maintaining lines of communication among patient, family, and both the facility-based nephrology team and caregivers who are outside the hospital setting. Irrespective of their need for dialysis, children with ESRD deserve and require developmentally appropriate care and anticipatory guidance with respect to primary care issues of childhood. The child who is on dialysis often is cared for solely or in large part by a nephrology service, therefore this review discusses issues that are particularly important to pediatric nephrologists in relation to selected primary care issues and comorbidities for the child who is on dialysis, with an emphasis on medical and psychosocial issues, and with particular weight placed on issues that are pertinent to the adolescent dialysis patient.
目前,任何年龄段开始透析的所有儿童的10年生存率接近70%,而年龄较大儿童的这一数字更接近80%。这些儿童在整个童年期间都将患有慢性肾脏病及其众多相关合并症。他们的护理很复杂,需要团队合作,并需要密切关注保持患者、家庭以及医院内的肾脏病团队和院外护理人员之间的沟通渠道。无论是否需要透析,终末期肾病患儿都应得到并需要针对儿童初级保健问题的适合其发育阶段的护理和预期指导。接受透析的儿童通常完全或大部分由肾脏病服务团队护理,因此,本综述讨论了与透析儿童的特定初级保健问题和合并症相关的、对儿科肾脏病医生尤为重要的问题,重点是医学和心理社会问题,尤其着重于与青少年透析患者相关的问题。