Goldstein Stuart L, Gerson Arlene C, Goldman Cheri W, Furth Susan
Department of Pediatrics, Baylor of Medicine and Renal Dialysis Unit, Texas Children's Hospital, Houston, TX 77030, USA.
Semin Nephrol. 2006 Mar;26(2):114-7. doi: 10.1016/j.semnephrol.2005.09.004.
Medical care advancements for children with chronic kidney disease (CKD) receiving hemodialysis, peritoneal dialysis, or with a renal transplant have resulted in relatively improved long-term patient survival compared with adult patients with CKD. Optimal care for the pediatric patient with CKD requires attention not only to medical management, but also the psychosocial and developmental factors that either will ensure or prevent a pediatric patient's successful transition into adulthood. We review the range of issues that impact pediatric CKD patients' health-related quality of life (HRQOL), the history of pediatric CKD patients' HRQOL investigation, and the instruments currently available to assess HRQOL.
与成年慢性肾脏病(CKD)患者相比,接受血液透析、腹膜透析或肾移植的儿童CKD患者的医疗护理进步使患者长期生存率得到了相对提高。对儿童CKD患者的最佳护理不仅需要关注医疗管理,还需要关注那些能够确保或阻碍儿童患者顺利过渡到成年期的心理社会和发育因素。我们回顾了影响儿童CKD患者健康相关生活质量(HRQOL)的一系列问题、儿童CKD患者HRQOL调查的历史以及目前可用于评估HRQOL的工具。