Saigal Saroj, Rosenbaum Peter
Department of Pediatrics, McMaster University, 1200 Main Street W., Room 4G40, Hamilton, ON L8N 3Z5, Canada.
Semin Fetal Neonatal Med. 2007 Oct;12(5):415-22. doi: 10.1016/j.siny.2007.06.006. Epub 2007 Aug 17.
The primary goals of modern perinatal intensive care are to improve survival and neurodevelopmental outcomes of high-risk infants. The detailed assessments at follow-up in the early years provide us with valuable information on the performance of the children at a given point in time. With increasing age of the subjects, the investigation into their outcome has evolved from a narrow focus of neurodevelopmental status to broader considerations of their overall morbidity, accomplishments and self-perception of their health and quality of life. In this chapter, we will reflect on the importance of the detailed measures in the early years, the impact of moderating background variables on predictability of outcomes, implications for the future and what really matters at young adulthood for infants born prematurely. We will explore the perspectives of different respondents and the need to look beyond the traditional measures to obtain complementary information.
现代围产期重症监护的主要目标是提高高危婴儿的存活率和神经发育结局。早年随访时的详细评估为我们提供了有关儿童在特定时间点表现的宝贵信息。随着研究对象年龄的增长，对其结局的调查已从对神经发育状况的狭隘关注，发展到对其总体发病率、成就以及对自身健康和生活质量的自我认知等更广泛的考量。在本章中，我们将思考早年详细测量的重要性、调节背景变量对结局可预测性的影响、对未来的启示以及对于早产婴儿而言在成年早期真正重要的因素。我们将探讨不同受访者的观点，以及超越传统测量方法以获取补充信息的必要性。
