Lee Mei-Yin, Chen Yueh-Chih, Wang Huei-Shyong, Chen Duan-Rung
Institute and Faculty of Nursing, School of Nursing, National Yang Ming University, and Division of Pediatric Neurology, Chang Gung Children's Hospital, Taiwan, ROC.
J Nurs Res. 2007 Sep;15(3):165-74. doi: 10.1097/01.jnr.0000387612.85897.9a.
The objective of this study was to assess the stress of parents and its influencing factors in caring for children with Tourette syndrome. A total of 150 subjects, either fathers or mothers of children diagnosed with Tourette syndrome between the ages of 6 and 12, were recruited by purposive sampling from the membership roster of the Taiwan Tourette Family Association. Study tools included a Parenting Stress Index Form and Social Support Index Form. The standardized score for parent perception of parenting stress was 83.5. The main stressor of parents of children with Tourette syndrome was found to be child care difficulties. A correlation was found between parenting stress and child gender, age, school situation and disease severity; parent age and family income. A significant negative correlation (r=-.459, p<.01) was found between social support and parenting stress. It was revealed that social support had a significant effect on parenting stress in this study. Multiple linear regression analysis found disease severity and family income to be the variables with the greatest predictive power for parenting stress, explaining 42% of total variance. Results showed that factors affecting parenting stress included family income and disease severity. These findings should help clinical professionals develop more effective health care strategies to address the needs of children with Tourette syndrome and their parents.
本研究的目的是评估抽动秽语综合征患儿家长的压力及其影响因素。通过目的抽样法，从台湾抽动秽语综合征家庭协会的成员名单中招募了150名研究对象，他们均为6至12岁被诊断为抽动秽语综合征患儿的父亲或母亲。研究工具包括育儿压力指数表和社会支持指数表。家长对育儿压力的标准化得分是83.5。研究发现，抽动秽语综合征患儿家长的主要压力源是照顾孩子困难。育儿压力与孩子性别、年龄、学校情况和疾病严重程度；家长年龄和家庭收入之间存在相关性。社会支持与育儿压力之间存在显著负相关（r = -0.459，p <.01）。研究表明，社会支持对本研究中的育儿压力有显著影响。多元线性回归分析发现，疾病严重程度和家庭收入是对育儿压力预测能力最强的变量，解释了总方差的42%。结果表明，影响育儿压力的因素包括家庭收入和疾病严重程度。这些发现应有助于临床专业人员制定更有效的医疗保健策略，以满足抽动秽语综合征患儿及其家长的需求。
