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自闭症儿童的适应行为、家庭支持、育儿压力与应对方式之间的关系。

The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping.

作者信息

Hall Heather R, Graff J Carolyn

机构信息

University of South Alabama College of Nursing, Mobile, Alabama 36688, USA.

出版信息

Issues Compr Pediatr Nurs. 2011;34(1):4-25. doi: 10.3109/01460862.2011.555270.

Abstract

BACKGROUND

As the number of children diagnosed with autism continues to rise, resources must be available to support parents of children with autism and their families. Parents need help as they assess their unique situations, reach out for help in their communities, and work to decrease their stress levels by using appropriate coping strategies that will benefit their entire family.

METHODS

A descriptive, correlational, cross-sectional study was conducted with 75 parents/primary caregivers of children with autism. Using the McCubbin and Patterson model of family behavior, adaptive behaviors of children with autism, family support networks, parenting stress, and parent coping were measured.

FINDINGS AND CONCLUSIONS

An association between low adaptive functioning in children with autism and increased parenting stress creates a need for additional family support as parents search for different coping strategies to assist the family with ongoing and new challenges. Professionals should have up-to-date knowledge of the supports available to families and refer families to appropriate resources to avoid overwhelming them with unnecessary and inappropriate referrals.

摘要

背景

随着被诊断患有自闭症的儿童数量持续上升,必须提供资源来支持自闭症儿童的父母及其家庭。父母在评估自身独特情况、在社区中寻求帮助以及通过使用有益于整个家庭的适当应对策略来努力降低压力水平时需要帮助。

方法

对75名自闭症儿童的父母/主要照料者进行了一项描述性、相关性横断面研究。采用麦库宾和帕特森的家庭行为模型,对自闭症儿童的适应性行为、家庭支持网络、育儿压力和父母应对方式进行了测量。

研究结果与结论

自闭症儿童适应性功能低下与育儿压力增加之间的关联表明,当父母寻求不同的应对策略来帮助家庭应对持续存在的和新出现的挑战时,需要额外的家庭支持。专业人员应掌握有关家庭可获得的支持的最新知识,并将家庭转介至适当的资源,以免用不必要和不适当的转介使他们不堪重负。

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