Meng Ya-Jun, Li Ning-Xiu, Liu Chao-Jie, Chen Jian-Hua, Song Yan-Chao, Qian Zu-Shu
School of Public Health, Sichuan University, Chengdu 610041, China.
Public Health. 2008 Apr;122(4):404-11. doi: 10.1016/j.puhe.2007.06.007. Epub 2007 Sep 6.
To assess the quality of life (QOL) and hostile mentality trend (HMT) of patients with human immunodeficiency virus/acquired immunodeficiency syndrome (HIV/AIDS) in China, and to identify their major concerns.
Short Form-36 (SF-36) was used to assess QOL, and seven items were developed to assess the HMT. In-depth interviews were conducted with patients and health workers.
SF-36 had moderate reliability, with Cronbach's alpha coefficients ranging from 0.75 to 0.90 and test-retest correlation coefficients ranging from 0.54 to 0.80 for the eight domains. The item-subscale correlation coefficients ranged from 0.46 to 0.97. The QOL of patients with HIV/AIDS was significantly lower than the average QOL of the general population (P<0.01). Hostile mentality of patients was significant (mean scores of the seven items ranged from 2.87 to 4.32, and the mean sum of scores was 3.45 from a range of 1-5). Cronbach's alpha coefficient of HMT items was 0.75 and the test-retest correlation coefficient was 0.80. The major concerns of patients with HIV/AIDS were financial insecurity and family responsibilities, followed by the fear of death and no cure for HIV/AIDS.
SF-36 is a reliable instrument for the assessment of QOL of patients with HIV/AIDS. The QOL of patients with HIV/AIDS in China is poor. The HMT is a valuable indicator to monitor the outcomes of care for patients with HIV/AIDS.
评估中国人类免疫缺陷病毒/获得性免疫缺陷综合征(HIV/AIDS)患者的生活质量(QOL)和敌对心态倾向(HMT),并确定他们主要关心的问题。
采用简短健康调查问卷36项(SF-36)评估生活质量,并制定了7个项目来评估敌对心态倾向。对患者和医护人员进行了深入访谈。
SF-36具有中等可靠性,8个领域的Cronbach's α系数在0.75至0.90之间,重测相关系数在0.54至0.80之间。项目-分量表相关系数在0.46至0.97之间。HIV/AIDS患者的生活质量显著低于一般人群的平均生活质量(P<0.01)。患者的敌对心态显著(7个项目的平均得分在2.87至4.32之间,得分总和的平均值为3.45,范围为1至5)。HMT项目的Cronbach's α系数为0.75,重测相关系数为0.80。HIV/AIDS患者主要关心的问题是经济不安全和家庭责任,其次是对死亡的恐惧以及HIV/AIDS无法治愈。
SF-36是评估HIV/AIDS患者生活质量的可靠工具。中国HIV/AIDS患者的生活质量较差。敌对心态倾向是监测HIV/AIDS患者护理效果的一个有价值的指标。