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HIV 感染者微信公众号中生活质量和身心健康的自我评估

Quality of life in patients with human immunodeficiency virus (HIV)/acquired immunodeficiency syndrome in a HIV WeChat account and self-assessment of physical and mental health.

机构信息

School of Politics and Public Administration, Guangxi Normal University, Guilin Guangxi 541006.

Center for Disease Control and Prevention in Shizhong District of Jinan City of Shandong Province, Jinan 250002, China.

出版信息

Zhong Nan Da Xue Xue Bao Yi Xue Ban. 2021;46(9):1024-1030. doi: 10.11817/j.issn.1672-7347.2021.200343.

Abstract

OBJECTIVES

To investigate the quality of life, self-assessment of mental and physical health, and their related factors inpatients with human immunodeficiency virus (HIV)/acquired immunodeficiency syndrome (AIDS).

METHODS

A total of 1 500 patients were selected from people living with HIV/AIDS (PLWHA) users in the WeChat work account from a Center for Disease Control and Prevention (CDC). Self-made General Condition Questionnaires, Perceived Social Support Scale, Life Satisfaction Scale, Self-Stigma Scale,HIV/ AIDS Stress Scale, Patients Health Questionnaire for Depression (PHQ-2), Generalized Anxiety Disorder-2 Scale (GAD-2), Pittsburgh Sleep Quality Index, the 12-Item Short Form Health Survey (SF-12) were used to conduct a one-to-one questionnaire survey through WeChat video in the selected samples. Binary unconditional logistic regression was used to investigate the influential factors for PLWHA quality of life and mental and physical health.

RESULTS

A total of 1 146 valid samples were obtained. The total mean score of Social Support Scale was 52±15, and 49.0% (562/1 146) of PLWHA users had low level social support (≤52 points); the total mean score of Life Satisfaction Scale was 13 ± 4, and 54.7% (627/1 146) of PLWHA users had high life satisfaction (>13 points); the total mean score of Self-Stigma Scale was 34 ± 8, and 52.2% (598/1 146) of PLWHA users had high self-stigma (>34 points); the total mean score of Stress Scale was 40±20, and 48.8% (559/1 146) of PLWHA users had high stress (>40 points); 53.4% (612/1 146) of PLWHA users had depressive symptoms in the past 2 weeks, 63.3% (725/1 146) had anxiety symptoms, and 24.3% (278/1 146) of PLWHA users had fair or very poor sleep quality in the past 1 month.There were significant differences in the mean standard scores of the 8 dimensions of the SF-12 scale in the PLWHA and the ordinary residents (all <0.001). The results of binary unconditional logistic regression analysis showed that the poor sleep quality (OR=1.53, <0.01), the HIV/AIDS-related stress (OR=1.42, <0.05), the abnormal indicators in the last physical examination (OR=1.49, <0.01), and the other chronic diseases in addition to HIV (OR=1.87, <0.01) were risk factors for poor physical health domains of PLWHA quality of life; and the poor life satisfaction (OR=2.49, <0.01), the suicidal ideation (OR=2.03, <0.01), the depression (OR=3.26, <0.01), the anxiety (OR=3.58, <0.01), the poor sleep quality (OR=2.53, <0.01), HIV/AIDS-related stress (OR=2.42, <0.01), and the low levels of social support (OR=1.46, <0.05) were the risk factors for poor mental health domains in PLWHA quality of life.

CONCLUSIONS

Compared with the ordinary residents, the PLWHA have lower quality of life, and we should focus on interventions to improve their physical and mental health.

摘要

目的

调查人类免疫缺陷病毒(HIV)/获得性免疫缺陷综合征(AIDS)患者的生活质量、身心健康自评及其相关因素。

方法

从疾病预防控制中心(CDC)的微信工作账户中选取 1500 名 HIV/AIDS(PLWHA)患者。采用一般情况问卷、感知社会支持量表、生活满意度量表、自我污名量表、HIV/AIDS 应激量表、患者健康问卷抑郁量表(PHQ-2)、广泛性焦虑障碍量表-2 量表(GAD-2)、匹兹堡睡眠质量指数、12 项简明健康状况量表(SF-12)对选定样本进行一对一的微信视频问卷调查。采用二元非条件 logistic 回归分析探讨 PLWHA 生活质量和身心健康的影响因素。

结果

共获得 1146 份有效样本。社会支持量表总分平均为 52±15,49.0%(562/1146)的 PLWHA 使用者社会支持水平较低(≤52 分);生活满意度量表总分平均为 13±4,54.7%(627/1146)的 PLWHA 使用者生活满意度较高(>13 分);自我污名量表总分平均为 34±8,52.2%(598/1146)的 PLWHA 使用者自我污名程度较高(>34 分);应激量表总分平均为 40±20,48.8%(559/1146)的 PLWHA 使用者应激水平较高(>40 分);53.4%(612/1146)的 PLWHA 患者在过去 2 周内有抑郁症状,63.3%(725/1146)有焦虑症状,24.3%(278/1146)的 PLWHA 患者在过去 1 个月内睡眠质量一般或很差。PLWHA 与普通居民在 SF-12 量表的 8 个维度的平均标准分数上均有显著差异(均<0.001)。二元非条件 logistic 回归分析结果显示,睡眠质量差(OR=1.53,<0.01)、HIV/AIDS 相关应激(OR=1.42,<0.05)、上一次体检异常指标(OR=1.49,<0.01)和除 HIV 以外的其他慢性病(OR=1.87,<0.01)是 PLWHA 生活质量身心健康领域不良的危险因素;生活满意度差(OR=2.49,<0.01)、自杀意念(OR=2.03,<0.01)、抑郁(OR=3.26,<0.01)、焦虑(OR=3.58,<0.01)、睡眠质量差(OR=2.53,<0.01)、HIV/AIDS 相关应激(OR=2.42,<0.01)和社会支持水平低(OR=1.46,<0.05)是 PLWHA 生活质量心理健康领域不良的危险因素。

结论

与普通居民相比,PLWHA 的生活质量较低,应重点关注改善其身心健康。

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