Paschal Angelia M, Hawley Suzanne R, St Romain Theresa, Liow Kore, Molgaard Craig A, Sly Jamilia, Sadler Toni L
University of Kansas School of Medicine-Wichita, Wichita, KS 67214-3199, USA.
Epilepsy Behav. 2007 Nov;11(3):329-37. doi: 10.1016/j.yebeh.2007.06.007. Epub 2007 Sep 10.
As individuals directly impacted by their experience of epilepsy and others' responses to it, epilepsy patients' opinions about education and awareness issues are needed. A community-based participatory approach was used to develop a survey of public and patient attitudes and perceptions about epilepsy, which was administered to persons with epilepsy. The majority of the 165 respondents (34% response rate) indicated they perceive misperceptions and stigma related to epilepsy in the general public, which they thought could be ameliorated through educational interventions. Respondents indicated potential avenues of educational intervention for the general public as well as for those with epilepsy, with recommended content and intervention type depending on target audience. The community-based participatory research process and the patients' perceptions gathered through the resulting survey indicate potential activities for overcoming stigma and increasing education and awareness related to epilepsy.
作为直接受癫痫经历及其他人反应影响的个体，癫痫患者对教育和认知问题的看法是必要的。采用基于社区的参与式方法，开展了一项关于公众和患者对癫痫态度与认知的调查，并对癫痫患者进行了调查。165名受访者中的大多数（回复率为34%）表示，他们察觉到公众对癫痫存在误解和污名化现象，他们认为可以通过教育干预来改善这种情况。受访者指出了针对普通公众以及癫痫患者的潜在教育干预途径，推荐的内容和干预类型取决于目标受众。基于社区的参与式研究过程以及通过该调查收集到的患者认知表明，在消除污名化以及提高与癫痫相关的教育和认知方面存在潜在活动。
