Demirci Serpil, Dönmez Cem M, Gündoğar Duru, Baydar Cetin L
Department of Neurology, Suleyman Demirel University School of Medicine, 32260, Isparta, Turkey.
Epilepsy Behav. 2007 Nov;11(3):427-33. doi: 10.1016/j.yebeh.2007.08.005.
The social stigma attached to epilepsy very often constitutes a considerable problem and much private grief for patients and their relatives. This study was aimed at investigating "perceivers"' awareness of, attitudes toward, and understanding of epilepsy in Isparta, Turkey. Using a questionnaire survey, we interviewed, face-to-face, a random sample of 582 persons older than 18, excluding persons with epilepsy or those with relatives who had epilepsy. Eighty-one percent of respondents had heard of epilepsy, 47% knew a person with epilepsy, and 54% had seen an epileptic seizure. Somewhat less knowledgable were the elderly and less educated individuals. Attitudes toward social acceptance and employment of persons with epilepsy were generally negative, especially to children's associations and marriage. Twelve percent considered epilepsy as a form of insanity. Although understanding of epilepsy was favorable, the results indicate that there exists significant discrimination against persons with epilepsy, and there is a need to implement public education campaigns.
与癫痫相关的社会耻辱感常常给患者及其亲属带来相当大的问题和许多个人痛苦。本研究旨在调查土耳其伊斯帕尔塔地区“认知者”对癫痫的知晓度、态度和理解。我们采用问卷调查的方式,对582名18岁以上的人进行了面对面访谈,这些人不包括癫痫患者或其亲属患有癫痫的人。81%的受访者听说过癫痫,47%认识癫痫患者,54%见过癫痫发作。老年人和受教育程度较低的人了解得相对较少。对癫痫患者社会接纳和就业的态度普遍消极,尤其是对儿童交往和婚姻方面。12%的人认为癫痫是一种精神错乱。尽管对癫痫的理解是积极的,但结果表明,对癫痫患者存在严重的歧视,有必要开展公众教育活动。