Pöder Ulrika, Ljungman Gustaf, von Essen Louise
Department of Public Health and Caring Sciences, Psychosocial Oncology, Uppsala University, Uppsala, Sweden.
Psychooncology. 2008 May;17(5):430-7. doi: 10.1002/pon.1263.
The main aim of this study was to investigate the occurrence of cancer-related posttraumatic stress disorder (PTSD) among parents of children on cancer treatment. A longitudinal design with assessments at one week (T1), two (T2), and four (T3) months after the child's diagnosis was used. Two hundred and fourteen parents (107 mothers, 107 fathers) participated at T1-T3. The PTSD Checklist Civilian (PCL-C), a self-report screening instrument for PTSD, was answered by parents over the telephone. According to the PCL-C symptom criteria method 33%, more mothers than fathers, score as potential cases of acute stress disorder (ASD) at T1, whereas 28% as potential cases of PTSD at T2 and 22% at T3. The levels of acute- and posttraumatic stress symptoms show a linear, descending pattern, and mothers report higher levels than fathers. Half of the parents who score as potential cases of ASD a week after the child's diagnosis score as potential cases of PTSD four months later. The findings illustrate that a group of parents of children with cancer experience serious psychological distress related to their child's disease. A traumatic stress perspective on childhood cancer should be applied to paediatric oncology care and appropriate psychosocial interventions should be offered to parents when needed.
本研究的主要目的是调查接受癌症治疗儿童的父母中与癌症相关的创伤后应激障碍（PTSD）的发生率。采用纵向设计，在儿童确诊后的1周（T1）、2周（T2）和4周（T3）进行评估。214名父母（107名母亲，107名父亲）参与了T1至T3阶段的研究。父母通过电话回答了用于PTSD自我报告筛查的平民版创伤后应激障碍检查表（PCL-C）。根据PCL-C症状标准方法，33%的母亲（高于父亲）在T1时被评定为急性应激障碍（ASD）的潜在病例，而在T2时为28%，在T3时为22%。急性和创伤后应激症状水平呈线性下降模式，母亲报告的水平高于父亲。在孩子确诊一周后被评定为ASD潜在病例的父母中，有一半在四个月后被评定为PTSD潜在病例。研究结果表明，一群患有癌症儿童的父母经历了与孩子疾病相关的严重心理困扰。儿童癌症的创伤应激视角应应用于儿科肿瘤护理，并应在需要时为父母提供适当的心理社会干预。
