Sandström Marianne, Lundin-Olsson Lillemor
Department of Community Medicine and Rehabilitation, Physiotherapy and Rehabilitation Medicine, University of Umeå, and the Department of Neurological Rehabilitation, Sävar, University Hospital of Northern Sweden, Sweden.
Clin Rehabil. 2007 Sep;21(9):833-45. doi: 10.1177/0269215507077278.
To develop a questionnaire for self-rated perceived participation in various life areas and to evaluate its reliability and validity.
Validation and test-retest study including multiple questionnaire-development steps.
Neurological rehabilitation centre.
One hundred and fifteen consecutive patients with progressive neurological diseases on the rehabilitation centre's waiting list were eligible to take part in the study; 85 completed. Twenty-two professionals within neurological rehabilitation also took part.
Reproducibility, internal consistency, content validity and clinical utility of the Rating of Perceived Participation (ROPP) questionnaire.
The ROPP questionnaire focuses on (1) patient's perceived participation (22 items selected from categories of the participation domains of the International Classification of Functioning, Disability, and Health), (2) patient's satisfaction with the participation level and the desired support for changing it, and (3) patient's selection of the three domains where improvement is most desired. The reproducibility of the perceived-participation items was moderate to good; (weighted kappa>or=0.70 for all but two items) and for satisfaction, desired support, and selected domains it was good or very good (kappa>0.70 for all but in total three items). Test-retest agreement (intraclass correlation (ICC)(1,1)=0.97) and internal consistency (Cronbach's alpha=0.90) for the total score were high. The content validity and clinical utility were good.
The ROPP questionnaire has sufficient psychometric reliability and validity and promises to be a useful questionnaire in neurological rehabilitation. Further research is needed to establish criterion validity and sensitivity to change.
编制一份用于自评在各个生活领域参与度的问卷，并评估其信度和效度。
包括多个问卷编制步骤的效度验证和重测研究。
神经康复中心。
康复中心候诊名单上115例连续的进行性神经疾病患者符合参与本研究的条件；85例完成了研究。22名神经康复专业人员也参与其中。
感知参与度评定（ROPP）问卷的可重复性、内部一致性、内容效度和临床实用性。
ROPP问卷关注（1）患者的感知参与度（从《国际功能、残疾和健康分类》参与领域类别中选取的22个条目），（2）患者对参与水平的满意度以及改变参与水平所需的支持，（3）患者选择的最希望改善的三个领域。感知参与度条目的可重复性为中等至良好（除两项外，所有条目的加权kappa≥0.70），满意度、所需支持和所选领域的可重复性为良好或非常好（除总共三项外，所有条目的kappa>0.70）。总分的重测一致性（组内相关系数（ICC）（1,1）=0.97）和内部一致性（Cronbach's alpha=0.90）较高。内容效度和临床实用性良好。
ROPP问卷具有足够的心理测量学信度和效度，有望成为神经康复中一份有用的问卷。需要进一步研究以确定效标效度和对变化的敏感性。
