Schaefer Iris Luzie, Dorschner Stephan
Fachhochschule Jena, Georg-Streiter-Institut für Pflegewissenschaft.
Pflege. 2007 Jun;20(3):129-36. doi: 10.1024/1012-5302.20.3.129.
Due to demographic change and increase of dementia there is an obvious need of voluntary hospice helpers who support dementia patients. The aim of this qualitative study was to describe the experience and challenges of hospice volunteers supporting dementia patients. The results were taken into account in the development of a training course. Ten narrative interviews were conducted with voluntary hospice helpers. The audiotaped interviews were analysed according to an interpretative phenomenological method. Three main issues, each consisting of three catagories, emerged from the interview data. The voluntary hospice helpers experience different facets and the progress of dementia ("to experience the process"). They provide a pleasant change in everyday life of and express their solidarity with dementia patients ("to create a good atmosphere"). They empathetically support dementia patients without expecting anything in return and they benefit from their work with dying people ("to put one's own interests last"). Voluntary hospice helpers offer important support for dementia patients but their role in the interdisciplinary team has to be defined. Training courses are useful to improve interaction and reflection skills.
由于人口结构变化和痴呆症患者数量增加，显然需要志愿临终关怀助手来支持痴呆症患者。这项定性研究的目的是描述临终关怀志愿者支持痴呆症患者的经历和挑战。研究结果被纳入了一个培训课程的开发过程中。对十位志愿临终关怀助手进行了叙事访谈。根据解释现象学方法对录音访谈进行了分析。访谈数据中出现了三个主要问题，每个问题又由三个类别组成。志愿临终关怀助手体验到了痴呆症的不同方面及其发展过程（“体验过程”）。他们给痴呆症患者的日常生活带来了愉快的改变，并表达了对他们的团结（“营造良好氛围”）。他们毫无保留地给予痴呆症患者支持，且从与临终患者的工作中受益（“将个人利益置于最后”）。志愿临终关怀助手为痴呆症患者提供了重要支持，但他们在跨学科团队中的角色必须明确界定。培训课程有助于提高互动和反思技能。
