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一项针对癫痫的社会心理自我管理项目:一项针对成年人的随机试点研究。

A psychosocial self-management program for epilepsy: a randomized pilot study in adults.

作者信息

Pramuka Michael, Hendrickson Rick, Zinski Anne, Van Cott Anne C

机构信息

University of Pittsburgh, Pittsburgh, PA, USA.

出版信息

Epilepsy Behav. 2007 Dec;11(4):533-45. doi: 10.1016/j.yebeh.2007.06.013. Epub 2007 Sep 29.

DOI:10.1016/j.yebeh.2007.06.013
PMID:17904909
Abstract

OBJECTIVE

The goal of the work described here was to develop and pilot a theoretically based self-management intervention in adults with epilepsy.

METHODS

A randomized, controlled trial examined intervention effectiveness of a 6-week psychosocial intervention designed to improve self-efficacy and quality of life for 61 adults with diagnosed epilepsy. Measures included the Quality of Life in Epilepsy-89 inventory (QOLIE-89), the Washington Psychosocial Seizure Inventory (WPSI), a locus of control scale (LOC), and the Epilepsy Self-Efficacy Scale-2000 (ESES). Group differences were examined between groups using analysis of covariance.

RESULTS

There was a significant improvement in the QOLIE-89 Role Limitations-Emotional score in the treatment group at follow-up, but no significant differences in overall quality of life. Strong and significant correlations were observed between outcome measures.

CONCLUSION

Although the intervention had little effect on improving overall quality of life, we observed promising trends in postintervention group comparisons linking self-efficacy and other psychosocial factors with quality of life. Intervention material can be modified for stage-based behavior change and retested in another study.

摘要

目的

本文所述工作的目标是为成年癫痫患者开发并试行一种基于理论的自我管理干预措施。

方法

一项随机对照试验检验了一项为期6周的心理社会干预措施的干预效果,该干预旨在提高61名已确诊癫痫的成年患者的自我效能感和生活质量。测量指标包括癫痫生活质量量表-89(QOLIE-89)、华盛顿心理社会癫痫量表(WPSI)、控制点量表(LOC)以及癫痫自我效能量表-2000(ESES)。使用协方差分析检验组间差异。

结果

随访时治疗组的QOLIE-89角色限制-情绪得分有显著改善,但总体生活质量无显著差异。在各测量指标之间观察到了强且显著的相关性。

结论

尽管该干预措施对改善总体生活质量影响甚微,但我们在干预后组间比较中观察到了有前景的趋势,即将自我效能感和其他心理社会因素与生活质量联系起来。干预材料可针对基于阶段的行为改变进行修改,并在另一项研究中重新测试。

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