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下一代自我管理教育:基于网络的双相情感障碍项目。

Next generation of self-management education: Web-based bipolar disorder program.

作者信息

Proudfoot Judith, Parker Gordon, Hyett Matthew, Manicavasagar Vijaya, Smith Meg, Grdovic Sue, Greenfield Leah

机构信息

School of Psychiatry, University of NSW and Black Dog Institute, Randwick, NSW, Australia.

出版信息

Aust N Z J Psychiatry. 2007 Nov;41(11):903-9. doi: 10.1080/00048670701634911.

Abstract

OBJECTIVE

Education and self-management training assist patients with bipolar disorder to take control of their condition and to reduce disability, but the timeliness and availability of the education are important. A free Web-based bipolar education program has been recently developed to provide accessible evidence-based information for patients, carers and health professionals. The present paper describes the nine-module program, reports usage data and user profiles, and overviews the aims and methodology of a randomized controlled trial to measure its impact.

METHODS

Customized Web reports were developed to measure usage of the Web-based program, and to profile its users on a month-by-month basis. Data on the percentage of completers of each module were also collected. A randomized controlled trial evaluating the program in people with newly diagnosed bipolar disorder was also commenced.

RESULTS

More than 8,000 visitors used the online program in its first 6 months. Users were predominantly female, of a broad cross-section of ages, 43.5% with bipolar disorder, and with the remainder describing themselves as health professionals, carers/family/friends of a person with bipolar disorder or members of the general public. The majority (76%) completed the sessions they commenced.

CONCLUSIONS

The Web-based education program is attracting a steady stream of users and is exhibiting good completion rates. This preliminary support for the program's utility requires validation from our randomized controlled trial before definite conclusions can be drawn.

摘要

目的

教育与自我管理培训有助于双相情感障碍患者控制病情并减少残疾,但教育的及时性和可获得性很重要。最近开发了一个免费的基于网络的双相情感障碍教育项目,为患者、护理人员和卫生专业人员提供可获取的循证信息。本文介绍了这个包含九个模块的项目,报告了使用数据和用户概况,并概述了一项随机对照试验的目的和方法,以评估其影响。

方法

开发了定制的网络报告来衡量基于网络的项目的使用情况,并逐月分析其用户概况。还收集了每个模块完成者的百分比数据。一项评估该项目对新诊断双相情感障碍患者影响的随机对照试验也已启动。

结果

在最初的6个月里,超过8000名访问者使用了该在线项目。用户主要为女性,年龄范围广泛,43.5%患有双相情感障碍,其余用户称自己为卫生专业人员、双相情感障碍患者的护理人员/家人/朋友或普通公众。大多数(76%)完成了他们开始的课程。

结论

基于网络的教育项目吸引了源源不断的用户,并且呈现出良好的完成率。在得出明确结论之前,该项目效用的这一初步支持需要通过我们的随机对照试验进行验证。

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