Zarek Aleksandra
Samodzielna Pracownia Psychologii i Socjologii Lekarskiej Pomorskiej Akademii Medycznej ul. Rybacka 1, 70-204 Szczecin.
Ann Acad Med Stetin. 2006;52 Suppl 3:113-7.
The necessity of partial or total glossectomy due to carcinoma of the oral cavity means that the patient suffers from severe and life-threatening disease and the medical team aims at eliminating that threat. The major goal of surgical intervention is to stop the growth of the cancer. However, it can be associated with considerable injury of the ill person. After the operation, the patient goes through the rehabilitation process during which he or she may experience suffering and various limitations resulting from injury. The patient also tries to adjust to the new situation in life. It is the time for the patient when the threat of death is no longer present or at least it has been averted and now the patient must challenge the process of adaptation associated with the loss of the tongue. The rehabilitation undertaken by the patient with the assistance of the medical team has two major goals. The first goal is to restore the function to the greatest possible extent, that is to learn to swallow and speak again. The second aim is psychological and sociological adaptation. In order to bring the patient into the process of acquiring new skills necessary for the realisation of basic life functions, as well as those needed for the fulfilment of substitutive forms of self-realisation and the achievement of satisfaction in life, the medical personnel should aim at understanding psychological and sociological conditions of the patient which may facilitate or impede patient's rehabilitation process and adaptation to illness. The examination and analysis of psychological dimensions characteristic of people struggling with cancer helps in understanding the patient, but first of all in learning individual experiences, problems and ways of coping with disability resulting from the particular form of injury. Research on the quality of life of patients after partial or total glossectomy is mostly concerned with functional aspects of the loss of the tongue and less attention is being paid to the subjective perspective of a patient. Although most patients suffer from significant functional impairments in swallowing, sensation and speech, as well as from difficulties in adaptation resulting from disability, some research shows that good quality of life can be maintained in patients who are highly motivated, have emotional support from their family and friends, maintain close contact with their physician, and have access to a rehabilitation team consisting of specialists of various disciplines.
口腔癌导致的部分或全舌切除术意味着患者患有严重且危及生命的疾病,医疗团队的目标是消除这种威胁。手术干预的主要目标是阻止癌症的生长。然而,这可能会给患者带来相当大的伤害。手术后,患者要经历康复过程,在此期间,他或她可能会因受伤而遭受痛苦并面临各种限制。患者也要努力适应生活中的新情况。此时,对患者来说,死亡威胁已不复存在,或者至少已经避免,现在患者必须应对与失去舌头相关的适应过程。在医疗团队的协助下,患者进行的康复有两个主要目标。第一个目标是尽可能恢复功能,即重新学会吞咽和说话。第二个目标是心理和社会适应。为了使患者参与到获得实现基本生活功能所需的新技能以及实现替代形式的自我实现和生活满意度所需技能的过程中,医务人员应致力于了解可能促进或阻碍患者康复过程和疾病适应的患者心理和社会状况。对与癌症作斗争的人的心理维度进行检查和分析有助于了解患者,但首先是了解个人经历、问题以及应对因特定形式的损伤导致的残疾的方式。关于部分或全舌切除术后患者生活质量的研究大多关注舌头缺失的功能方面,而较少关注患者的主观视角。尽管大多数患者在吞咽、感觉和言语方面存在严重的功能障碍,以及因残疾导致适应困难,但一些研究表明,积极性高、有家人和朋友情感支持、与医生保持密切联系并能获得由各学科专家组成的康复团队帮助的患者能够维持良好的生活质量。