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在德语国家建立先天性黑素细胞痣患者网络。

Installation of a network for patients with congenital melanocytic nevi in German-speaking countries.

作者信息

Krengel Sven, Breuninger Helmut, Hauschild Axel, Höger Peter, Merl Volker, Hamm Henning

机构信息

Dermatology practice, Lübeck, Germany.

出版信息

J Dtsch Dermatol Ges. 2008 Mar;6(3):204-8. doi: 10.1111/j.1610-0387.2007.006568.x. Epub 2007 Nov 14.

DOI:10.1111/j.1610-0387.2007.006568.x
PMID:18021247
Abstract

In 2005, an Internet-based network for the support of patients with congenital melanocytic nevi in German-speaking countries was started (http://www.naevus-netzwerk.de). Along with detailed information for patients and parents, the home-page includes a nevus registry which is based on an electronic questionnaire and which aims at providing data on the long-term course of nevi estimated to reach > 10 cm in largest diameter. In the past, congenital melanocytic nevi have been subject to various mythological interpretations ("Tierfellnävus", lit."animal coat nevus";"Muttermal"). Today an increasing body of reliable scientific data allows a differentiated reflection of the risk of malignant transformation and has led to progress in the diagnostic and therapeutic management. Recent findings from the literature and considerations from scientific meetings are reviewed.

摘要

2005年,一个旨在支持德语国家先天性黑素细胞痣患者的基于互联网的网络启动(http://www.naevus-netzwerk.de)。除了为患者和家长提供详细信息外,该主页还设有一个痣登记处,它基于一份电子问卷,旨在提供有关估计最大直径超过10厘米的痣的长期病程数据。过去,先天性黑素细胞痣曾有过各种神话解释(“Tierfellnävus”,字面意思是“兽皮痣”;“母斑”)。如今,越来越多可靠的科学数据使得人们能够对恶性转化风险进行差异化思考,并推动了诊断和治疗管理方面的进展。本文回顾了文献中的最新发现以及科学会议上的相关思考。

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