Jacoby Ann, Austin Joan K
Division of Public Health, University of Liverpool, Liverpool, United Kingdom.
Epilepsia. 2007;48 Suppl 9:6-9. doi: 10.1111/j.1528-1167.2007.01391.x.
For many people with epilepsy, the continuing social reality of their condition is as a stigma. Epilepsy stigma has three different levels; internalized, interpersonal, and institutional. While there have been documented improvements in public attitudes towards epilepsy, the remnants of "old" ideas about epilepsy continue to inform popular concepts resulting in a difficult social environment for those affected. The social and quality of life problems arising from a diagnosis of epilepsy can represent greater challenges than are warranted by its clinical severity. The relationship between stigma and impaired quality of life is well documented. Tackling the problem of stigma effectively requires that all three of different levels at which it operates are systematically addressed.
对于许多癫痫患者而言，他们病情所带来的持续的社会现实是一种耻辱。癫痫耻辱感有三个不同层面：内化层面、人际层面和制度层面。尽管有记录表明公众对癫痫的态度有所改善，但关于癫痫的“旧”观念残余仍在影响大众认知，给患者造成艰难的社会环境。癫痫诊断所引发的社会问题和生活质量问题，可能比其临床严重程度所应导致的问题更具挑战性。耻辱感与生活质量受损之间的关系已有充分记录。有效解决耻辱感问题需要系统地应对其运作的所有三个不同层面。
