College of Nursing and Department of Neurosciences, Medical University of South Carolina, Charleston, SC 29425, USA.
Epilepsy Behav. 2009 Nov;16(3):484-90. doi: 10.1016/j.yebeh.2009.08.028. Epub 2009 Sep 24.
Living Well with Epilepsy II called for further attention to stigma and its impact on people with epilepsy. In response, the South Carolina Health Outcomes Project on Epilepsy (SC HOPE) is examining the relationship between socioeconomic status, epilepsy severity, health care utilization, and quality of life in persons diagnosed with epilepsy. The current analysis quantifies perceived stigma reported by adults with epilepsy in relation to demographic, seizure-related, health, and psychosocial factors. It was found that reported levels of stigma were associated with interactions of seizure worry and employment status, self-efficacy and social support, and quality care and age at seizure onset. This information may be used to target and develop evidence-based interventions for adults with epilepsy at high risk for perceived stigma, as well as to inform epilepsy research in self-management.
《癫痫生活 II》呼吁进一步关注癫痫患者的耻辱感及其影响。为此，南卡罗来纳州癫痫健康结果项目 (SC HOPE) 正在研究社会经济地位、癫痫严重程度、医疗保健利用与被诊断患有癫痫的人的生活质量之间的关系。目前的分析量化了成年人癫痫患者报告的感知耻辱与人口统计学、癫痫相关、健康和社会心理因素之间的关系。结果发现，报告的耻辱感水平与癫痫发作的担忧和就业状况、自我效能和社会支持以及优质护理和癫痫发作年龄的相互作用有关。这些信息可以用于针对有感知耻辱感风险的癫痫成年人制定有针对性的循证干预措施，并为自我管理中的癫痫研究提供信息。
