Puchalski Christina M
The George Washington University, Washington, DC, USA.
Omega (Westport). 2007;56(1):33-46. doi: 10.2190/om.56.1.d.
Spirituality is an essential component of the care of patients with serious illness and those that are dying. Dame Cicely Saunders developed the hospice movement based on the biopsychosocialspiritual model of care, in which all four dimensions are important in the care of patients. Of all the models of care, hospice and palliative care recognize the importance of spiritual issues in the care of patients and their families. The National Consensus Project Guidelines for Quality Palliative Care, in the United States, provides specific recommendations about all domains of care including the spiritual domain, which is recognized as a critical component of care (The National Consensus Project for Quality Palliative Care www.nationalconsensusproject.org). Studies indicate that the majority of patients would like their spiritual issues addressed, yet find that their spiritual needs are not being met by the current system of care. Interestingly, spirituality is the one dimension that seems to get slightly less emphasis than the biopsychosocial dimensions of care. Some reasons may include the difficulty with definitions of spirituality for clinical and research purposes, the time constraints and financial burdens in the current healthcare system in the United States, and the lack of uniform training for all healthcare professionals. Yet, there are theoretical and ethical frameworks that support spiritual care as well as some educational models in spirituality and health that have been successful in medical education in the United States. Spirituality can be seen as the essential part of the humanity of all people. It is at its root, relational and thus forms the basis of the altruistic care healthcare professionals are committed to. Spirituality has to do with respecting the inherent value and dignity of all persons, regardless of their health status. It is the part of humans that seeks healing, particularly in the midst of suffering. Spiritual care models are based on an intrinsic aspect that calls for compassionate presence to patients as well as an extrinsic component where healthcare professionals address spiritual issues with patients and their loved ones. Currently in the healthcare system, evidence-base models are the criteria for practice recommendations. Yet, spirituality may not be amenable entirely to strict evidence-base criteria. As hospice and palliative care continues to develop as a field, healthcare professionals are challenged to think of ways to advocate for and include the spiritual dimension of care.
灵性是重症患者及临终患者护理的重要组成部分。西塞莉·桑德斯夫人基于生物心理社会灵性护理模式发起了临终关怀运动,在该模式中,这四个维度在患者护理中都很重要。在所有护理模式中,临终关怀和姑息治疗都认识到灵性问题在患者及其家人护理中的重要性。美国国家质量姑息治疗共识项目指南针对包括灵性领域在内的所有护理领域提供了具体建议,灵性领域被视为护理的关键组成部分(国家质量姑息治疗共识项目www.nationalconsensusproject.org)。研究表明,大多数患者希望他们的灵性问题得到解决,但发现当前的护理系统无法满足他们的灵性需求。有趣的是,灵性这一维度似乎比生物心理社会护理维度受到的重视略少。一些原因可能包括临床和研究目的下灵性定义的困难、美国当前医疗系统中的时间限制和经济负担,以及所有医疗专业人员缺乏统一培训。然而,有理论和伦理框架支持灵性护理,以及一些在美国医学教育中取得成功的灵性与健康方面的教育模式。灵性可被视为所有人性的重要组成部分。从根本上说,它是关乎人际关系的,因此构成了医疗专业人员致力于的利他护理的基础。灵性关乎尊重所有人的内在价值和尊严,无论其健康状况如何。它是人类寻求治愈的部分,尤其是在痛苦之中。灵性护理模式基于一个内在方面,即要求对患者给予富有同情心的陪伴,以及一个外在组成部分,即医疗专业人员与患者及其亲人探讨灵性问题。目前在医疗系统中,循证模式是实践建议的标准。然而,灵性可能不完全符合严格的循证标准。随着临终关怀和姑息治疗作为一个领域不断发展,医疗专业人员面临着思考如何倡导并纳入护理的灵性维度的挑战。