McGrath Pam, Holewa Hamish, McGrath Zoe
International Program for Psycho-Social Health Research, Central Queensland University, Queensland.
Collegian. 2007 Jul;14(3):21-6. doi: 10.1016/s1322-7696(08)60561-2.
With regards to end-of-life care, there is scant published research that looks specifically at the provision of palliative care services for Indigenous people. In addition, for Indigenous people in the rural and remote areas there is only limited literature that focuses on the problems associated with geography. To address the hiatus in the literature on Aboriginal, rural and remote palliative care, the following article provides findings from a two-year research project, funded by Australia's National Health and Medical Research Council (NH&MRC), which developed an innovative model for Indigenous palliative care. The data was collected through a qualitative methodology (descriptive phenomenology) which involved open-ended in-depth interviews, audio-recorded, transcribed verbatim and thematically analysed. The sub-set of findings from the study presented in this paper examine issues in relation to the many practical obstacles in relation to palliative care service provision to Indigenous people in the rural and remote areas. The findings are a testament to the ingenuity and dedication of those who provide end-of-life care for Aboriginal peoples in rural and remote locations. The information about the many obstacles associated with equipment, power, transport, distance and telephone access provide important insights to inform the development of health policy planning and funding. The topic is specifically relevant to nurses as further findings from the study indicate that clinic and community nurses are key health professionals providing care to Indigenous people in the rural and remote areas.
关于临终关怀,专门针对为原住民提供姑息治疗服务的已发表研究很少。此外,对于农村和偏远地区的原住民,仅有有限的文献关注与地理位置相关的问题。为解决关于原住民、农村和偏远地区姑息治疗的文献空白,以下文章介绍了一项由澳大利亚国家卫生与医学研究委员会(NH&MRC)资助的为期两年的研究项目的结果,该项目开发了一种创新的原住民姑息治疗模式。数据通过定性方法(描述性现象学)收集,包括开放式深度访谈、录音、逐字转录和主题分析。本文呈现的该研究结果子集探讨了在为农村和偏远地区的原住民提供姑息治疗服务方面存在的诸多实际障碍相关问题。这些发现证明了那些为农村和偏远地区的原住民提供临终关怀的人们的创造力和奉献精神。关于与设备、电力、交通、距离和电话接入相关的诸多障碍的信息,为卫生政策规划和资金投入的制定提供了重要见解。该主题与护士尤其相关,因为该研究的进一步结果表明,诊所和社区护士是为农村和偏远地区的原住民提供护理的关键卫生专业人员。