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辅助沟通设备在肌萎缩侧索硬化症医疗管理中的作用。

The role of augmentative communication devices in the medical management of ALS.

作者信息

Brownlee Alisa, Palovcak Merisa

机构信息

ALS Association, Greater Philadelphia Chapter, PA, USA.

出版信息

NeuroRehabilitation. 2007;22(6):445-50.

Abstract

When an individual has a severe verbal communication impairment, Augmentative and Alternative Communication (AAC) can meet the overall goals of palliative care. AAC can improve quality of life by optimizing function, assisting with decision making, and providing opportunities for personal growth. This article will define AAC and its importance in the medical management of a person with ALS. The process of obtaining an electronic AAC device, issues affecting use, and communication challenges and obstacles unique to ALS will be described including dysarthria and the diagnostic testing for speech and rationale for AAC. Communication solutions, which may include no-technology, low-technology and high-technology options will be discussed, as well as the importance of psychosocial issues and the factors that may influence the use of these systems.

摘要

当个体存在严重的言语交流障碍时,辅助和替代沟通(AAC)可满足姑息治疗的总体目标。AAC可通过优化功能、协助决策以及提供个人成长机会来提高生活质量。本文将定义AAC及其在肌萎缩侧索硬化症(ALS)患者医疗管理中的重要性。将描述获取电子AAC设备的过程、影响使用的问题以及ALS特有的沟通挑战和障碍,包括构音障碍以及言语诊断测试和AAC的原理。还将讨论沟通解决方案,其中可能包括无技术、低技术和高技术选项,以及心理社会问题的重要性和可能影响这些系统使用的因素。

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