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喘息服务对患有严重残疾的学龄儿童和成年子女的母亲的影响。

Effects of respite on mothers of school-age and adult children with severe disabilities.

作者信息

Botuck S, Winsberg B G

机构信息

Young Adult Institute, New York, NY 10117-0070.

出版信息

Ment Retard. 1991 Feb;29(1):43-7.

PMID:1826757
Abstract

The immediate and short-term effects of a preplanned, 10-day overnight respite on 14 mothers of school-age and adult children with multiple disabilities were evaluated. Change in maternal mood, well-being, and activity patterns was measured before, during, and after respite. The data indicate that during respite, mothers experienced increased feelings of well-being and less depressed mood. Concomittant changes in activity patterns were also found. After respite, increased feelings of well-being continued, and there was a strong tendency for mothers to be less depressed. Results suggest that researchers should conduct controlled evaluation, using standardized measures, to assess the effectiveness of respite on enhancing the quality of life of mothers caring for children with disabilities at home.

摘要

对14位抚养学龄儿童及成年残疾子女的母亲进行了一项预先计划的、为期10天的夜间短期休养,并对其即时和短期效果进行了评估。在休养前、休养期间和休养后测量了母亲情绪、幸福感和活动模式的变化。数据表明,在休养期间,母亲们的幸福感增强,情绪低落感减轻。还发现了活动模式的相应变化。休养后,幸福感持续增强,母亲们情绪低落的倾向明显降低。结果表明,研究人员应采用标准化测量方法进行对照评估,以评估短期休养对提高在家照顾残疾儿童母亲生活质量的有效性。

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