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青少年特发性关节炎患儿及青少年的健康相关生活质量:年龄、性别和医学参数起何种作用?

[Health-related quality of life in children and adolescents with juvenile idiopathic arthritis: which role do age, sex and medical parameters play?].

作者信息

Petersen C, Nordmeyer S, Müller-Godeffroy E, Foeldvari I, Küster R-M, Bullinger M

机构信息

Institut und Poliklinik für Medizinische Psychologie, Universitätsklinikum, Hamburg-Eppendorf, Hamburg.

出版信息

Klin Padiatr. 2008 Jul-Aug;220(4):259-65. doi: 10.1055/s-2007-985850. Epub 2008 Feb 12.

Abstract

BACKGROUND

The assessment of health-related quality of life gains increasing importance in pediatric practice. In the field of rheumatic health conditions in young people only a few studies about this topic are available. Within a European study health-related quality of life of children and adolescents with idiopathic arthritis was assessed. The results of the German sample will be presented.

PATIENTS

A total of N=88 children and adolescents with juvenile idiopathic arthritis (57% female) between 8 und 16 years were included in the study.

METHOD

Children and adolescents filled in a questionnaire. Health-related quality of life was assessed with the DISABKIDS instrument.

RESULTS

No age or gender effects on health-related quality of life were detected. The variable "limitation of mobility" as well as the item "pain" showed the strongest relationship with the health-related quality of life dimensions.

CONCLUSIONS

Health-related quality of life is decisively influenced by the consequences of the health condition. For clinical practice the study showed that patients with mobility limitations and/or pain need heightened attention which should especially concentrate on the social and mental dimensions of health-related quality of life.

摘要

背景

在儿科实践中,与健康相关的生活质量评估变得越来越重要。在青少年风湿性健康状况领域,关于这个主题的研究很少。在一项欧洲研究中,对患有特发性关节炎的儿童和青少年的与健康相关的生活质量进行了评估。将展示德国样本的结果。

患者

共有88名8至16岁的青少年特发性关节炎儿童和青少年(57%为女性)被纳入研究。

方法

儿童和青少年填写一份问卷。使用残疾儿童量表评估与健康相关的生活质量。

结果

未检测到年龄或性别对与健康相关的生活质量有影响。“活动受限”变量以及“疼痛”项目与与健康相关的生活质量维度显示出最强的相关性。

结论

与健康相关的生活质量受到健康状况后果的决定性影响。对于临床实践,该研究表明,活动受限和/或疼痛的患者需要更多关注,尤其应集中在与健康相关的生活质量的社会和心理维度上。

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