Lauver Lori S
Thomas Jefferson University, School of Nursing, Nursing Education Center, Danville, PA 17822, USA.
J Fam Nurs. 2008 Feb;14(1):74-96. doi: 10.1177/1074840707313337.
The experience of parenting foster children with chronic illness and complex medical needs was explored in a phenomenological inquiry with 10 foster families. Thirteen participants currently fostering chronically ill children with complex medical needs were interviewed. Recorded interviews were transcribed and analyzed using van Manen's method. Data analysis yielded five essential themes: Foster parents described being committed to the child in their care, coming to know the needs of a medically complex foster child, and identifying effective and ineffective interventions encountered through day-to-day living with a medically complex child. Furthermore, they shared what it was like to experience loss of a child through relinquishment and death. Last, for these parents, fostering children with complex health care needs was a life-changing experience. The findings show that parenting a chronically ill foster child with complex medical needs is a multifaceted experience having implications for multiple disciplines.
一项针对10个寄养家庭的现象学调查,探究了养育患有慢性病且有复杂医疗需求的寄养儿童的经历。对13名目前正在养育患有复杂医疗需求的慢性病儿童的参与者进行了访谈。对录音访谈进行转录,并使用范曼恩方法进行分析。数据分析得出了五个基本主题:寄养父母描述了对他们所照顾孩子的承诺,逐渐了解患有复杂医疗需求的寄养儿童的需求,以及确定在与患有复杂医疗需求的儿童日常生活中遇到的有效和无效干预措施。此外,他们分享了通过送养和死亡失去孩子的感受。最后,对这些父母来说,养育有复杂医疗需求的孩子是一次改变人生的经历。研究结果表明,养育患有复杂医疗需求的慢性病寄养儿童是一种多方面的经历,对多个学科都有影响。