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患有哮喘子女的父亲的生活体验:一项现象学研究。

The lived experience of fathers who have children with asthma: a phenomenological study.

作者信息

Cashin Geraldine H, Small Sandra P, Solberg Shirley M

机构信息

Center for Nursing Studies, St. John's, NL, Canada.

出版信息

J Pediatr Nurs. 2008 Oct;23(5):372-85. doi: 10.1016/j.pedn.2007.08.001. Epub 2008 Apr 25.

Abstract

Asthma is a common chronic illness of childhood and a major cause of school absenteeism and hospitalization. When a child is diagnosed with asthma, parents become responsible for the long-term management of a chronic condition that is characterized by unpredictable and irregular episodes. Much of the research concerning parenting children who have asthma had focused on mothers. Paternal experiences in caring for a child with asthma have received little attention. In this phenomenological study, van Manen's (Researching Lived Experience: Human Science for an Action Sensitive Pedagogy. The Althouse Press: London, ON) method of inquiry was used to explore the lived experience of fathers who have children with asthma. Eight fathers with children aged between 7 and 11 years who had been diagnosed with asthma were interviewed. Five themes were identified: feeling relief in knowing the diagnosis, learning the ropes, being vigilant, living with concern, and being comfortable with asthma management. Understanding the experience of fathers who have children with asthma and gaining insight into their needs and concerns are essential first steps to providing supportive nursing care.

摘要

哮喘是一种常见的儿童慢性疾病,是导致缺课和住院的主要原因。当孩子被诊断出患有哮喘时,家长就需要长期负责管理这种以不可预测和不定期发作为特征的慢性疾病。许多关于养育哮喘患儿的研究都集中在母亲身上。父亲照顾哮喘患儿的经历很少受到关注。在这项现象学研究中,采用了范曼恩(《研究生活经历:行动敏感教育学的人文科学》。阿尔thouse出版社:安大略省伦敦)的探究方法,以探索有哮喘患儿的父亲的生活经历。采访了八位孩子年龄在7至11岁之间且被诊断出患有哮喘的父亲。确定了五个主题:得知诊断后感到宽慰、摸索门道、保持警惕、忧心度日以及对哮喘管理感到安心。了解有哮喘患儿的父亲的经历并深入了解他们的需求和担忧,是提供支持性护理的重要第一步。

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