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瑞典北部一群管理人员、政治家和专业人士在银屑病护理中面临的优先级困境及对未来护理的展望。

Priority dilemmas in psoriasis care and visions of a future care in a group of administrators, politicians and professionals in northern Sweden.

作者信息

Uttjek Margaretha, Dufåker Mona, Stenberg Berndt, Nygren Lennart

机构信息

Section of Dermatology and Venereology, Department of Public Health and Clinical Medicine, Umeå University, SE-901 85 Umeå, Sweden.

出版信息

Health Policy. 2008 Aug;87(2):203-16. doi: 10.1016/j.healthpol.2008.01.005. Epub 2008 Feb 25.

DOI:10.1016/j.healthpol.2008.01.005
PMID:18302973
Abstract

During the 1990s priority discussions were actualized in Sweden due to increased demands on health care and limited resources. In the county of Västerbotten in northern Sweden, with large rural areas, the decision makers faced special challenges due to distances and cost. Despite discussions striving for fairness in priorities, decision makers are still dealing with limited resources and difficult priority decisions regarding different diseases and treatments. In this study we aimed at describing views on priorities in public psoriasis care and visions of a future care among politicians, administrators and professionals in the county of Västerbottten in northern Sweden. Qualitative research interviews were performed with 23 key-persons. The findings revealed priority dilemmas about issues on organization, accessibility and ethics. Visions of a future care appeared as ambitions of a more effective care with good accessibility, continued research, information and a holistic approach in priorities. We conclude that dilemmas revealed in this study were a reflection of a gap between intentions and practice. In efforts to reduce these dilemmas we suggest methods with fairness in economic planning and priority setting, with concrete, official statements about the dominating views on which the priorities are based, and public information about these statements.

摘要

20世纪90年代,由于对医疗保健的需求增加而资源有限,瑞典展开了关于优先事项的讨论。在瑞典北部拥有大片农村地区的西博滕县,由于距离和成本问题,决策者面临着特殊挑战。尽管讨论力求在优先事项上实现公平,但决策者仍在应对资源有限以及关于不同疾病和治疗方法的艰难优先决策。在本研究中,我们旨在描述瑞典北部西博滕县的政治家、行政人员和专业人员对公共银屑病护理优先事项的看法以及对未来护理的愿景。我们对23名关键人物进行了定性研究访谈。研究结果揭示了在组织、可及性和伦理问题上的优先困境。未来护理的愿景表现为对更有效护理的追求,包括良好的可及性、持续研究、信息以及在优先事项上采取整体方法。我们得出结论,本研究中揭示的困境反映了意图与实践之间的差距。为了减少这些困境,我们建议在经济规划和优先事项设定中采用公平的方法,就优先事项所基于的主导观点发表具体、官方的声明,并向公众宣传这些声明。

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Health Policy. 2008 Aug;87(2):203-16. doi: 10.1016/j.healthpol.2008.01.005. Epub 2008 Feb 25.
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