Etchegary Holly, Potter Beth, Howley Heather, Cappelli Mario, Coyle Doug, Graham Ian, Walker Mark, Wilson Brenda
Epidemiology and Community Medicine, University of Ottawa, Ottawa, Ontario, Canada.
Genet Test. 2008 Mar;12(1):115-24. doi: 10.1089/gte.2007.0057.
Minimal research focuses on the process of decision making in the context of prenatal screening and testing. This paper outlines an important contextual influence on these decisions. Specifically, we propose that experiential knowledge, particularly about pregnancy, screening, and disability, has a significant influence on prenatal screening and testing decisions. Drawing upon 38 semistructured interviews with women, this study explored how women made prenatal screening and testing decisions. Qualitative data analysis revealed two types of experiential knowledge, empathetic and embodied, which played a pivotal role in women's thinking about the value of prenatal tests and whether or not they accepted the offer of screening, testing, or both. We conclude that prenatal genetic counseling could benefit from an exploration of clients' experiential knowledge, both empathetic and embodied forms.
极少有研究关注产前筛查与检测背景下的决策过程。本文概述了对这些决策的一个重要背景影响因素。具体而言，我们认为经验性知识，尤其是关于怀孕、筛查和残疾的知识，对产前筛查与检测决策有重大影响。本研究通过对38名女性进行半结构化访谈，探讨了女性如何做出产前筛查与检测决策。定性数据分析揭示了两种经验性知识，即同理心型和具身型，它们在女性思考产前检测的价值以及她们是否接受筛查、检测或两者皆接受的提议时发挥了关键作用。我们得出结论，产前遗传咨询可通过探索客户的经验性知识（包括同理心型和具身型）而受益。
