Dannemann Karen, Hecker Wolfgang, Haberland Holger, Herbst Antje, Galler Angela, Schäfer Thorsten, Brähler Elmar, Kiess Wieland, Kapellen Thomas M
Hospital for Children and Adolescents, University of Leipzig, Leipzig, Germany.
Pediatr Diabetes. 2008 Jun;9(3 Pt 1):228-35. doi: 10.1111/j.1399-5448.2008.00377.x. Epub 2008 Mar 5.
Complementary and alternative medicine (CAM) is increasingly used in adults and children. Studies on CAM in diabetes have mainly focused on the adult population and its use among children with type 1 diabetes has not been well characterized.
This study determines prevalence, parental reasons and motivations, perceived effectiveness, costs, and communication of CAM use. Moreover, caregiver-related variables associated with the use of CAM were investigated.
A self-completed anonymous questionnaire was administered to parents of children with type 1 diabetes in four pediatric diabetes centers in Germany (Leipzig, Berlin, Stuttgart, and Bonn).
Two hundred and twenty eight (65.9%) of 346 families completed the survey. Mean age of the diabetic patients was 11.9 +/- 3.8 yr. Forty two (18.4%) received one or more types of CAM, with the most common types being homeopathy (14.5%), vitamins and minerals (13.7%), modified diet (12.9%), aloe vera (7.3%), and cinnamon (5.6%). Users had a significantly higher family income and parental tertiary education (p < 0.05) and stated a significantly stronger interest in self-care (p < 0.01). Parents' motivations for using CAM were the hope for an improved well-being (92.1%), to try everything (77.8%), and assumption of fewer side effects (55.2%). Costs for the entire treatment varied between less than euro100 and up to euro5000, with mostly no reimbursement.
Use of CAM in children with type 1 diabetes is less common than that documented for adults. Parents using CAM do not question the need for insulin. When using CAM, improved well-being and quality of life are important considerations where CAM can have a role.
补充和替代医学(CAM)在成人和儿童中使用得越来越多。关于糖尿病中补充和替代医学的研究主要集中在成人人群,其在1型糖尿病儿童中的使用情况尚未得到充分描述。
本研究确定补充和替代医学使用的患病率、家长的原因和动机、感知效果、成本以及沟通情况。此外,还调查了与补充和替代医学使用相关的照顾者相关变量。
在德国的四个儿科糖尿病中心(莱比锡、柏林、斯图加特和波恩),对1型糖尿病儿童的家长进行了一份自我填写的匿名问卷调查。
346个家庭中有228个(65.9%)完成了调查。糖尿病患者的平均年龄为11.9±3.8岁。42名(18.4%)接受了一种或多种类型的补充和替代医学,最常见的类型是顺势疗法(14.5%)、维生素和矿物质(13.7%)、改良饮食(12.9%)、芦荟(7.3%)和肉桂(5.6%)。使用者的家庭收入和家长的高等教育程度显著更高(p<0.05),并且对自我护理的兴趣显著更强(p<0.01)。家长使用补充和替代医学的动机是希望改善健康状况(92.1%)、尝试一切方法(77.8%)以及认为副作用较少(55.2%)。整个治疗的费用在不到100欧元到高达5000欧元之间,大部分没有报销。
1型糖尿病儿童使用补充和替代医学的情况比成人中记录的要少见。使用补充和替代医学的家长并不质疑胰岛素治疗的必要性。在使用补充和替代医学时,改善健康状况和生活质量是重要的考虑因素,补充和替代医学可以在其中发挥作用。