Cepeda M Soledad, Chapman C Richard, Miranda Nelcy, Sanchez Ricardo, Rodriguez Carlos H, Restrepo Andres E, Ferrer Lina M, Linares Rene A, Carr Daniel B
Department of Anesthesia, Tufts-New England Medical Center, Boston, Massachusetts 02111, USA.
J Pain Symptom Manage. 2008 Jun;35(6):623-31. doi: 10.1016/j.jpainsymman.2007.08.011. Epub 2008 Mar 24.
Narrative medicine is based upon physicians' awareness of patients' narration of their suffering, their hopes, and how illness has affected them. It offers a model for improving health outcomes. To determine whether incorporating a narrative approach in patients with cancer decreases pain intensity and improves their global sense of well-being, we performed a randomized, single-blind controlled trial in adult patients with cancer and average pain intensity levels of at least 5/10. Two hundred thirty-four patients were randomized into three groups: (1) narrative (n=79), in which patients wrote a story about how cancer affected their lives for at least 20 minutes once a week for three weeks; (2) questionnaire (n=77), in which patients filled out the McGill Pain Questionnaire; and (3) control (n=78), in which patients came weekly to medical visits during which they received usual customary care. Patients rated their pain on a 0-10 scale and their well-being on a seven-point Likert scale weekly for eight weeks. Two raters independently evaluated the emotional content of the narratives. Pain intensity and sense of well-being were similar in all groups before and after treatment. Subgroup analyses showed that patients whose narratives had high emotional disclosure had significantly less pain and reported higher well-being scores than patients whose narratives were less emotional. Further study is needed to demonstrate whether the implementation of narrative medicine is associated with health benefits in this and other contexts.
叙事医学基于医生对患者讲述其痛苦、希望以及疾病如何影响他们的认知。它提供了一种改善健康结果的模式。为了确定对癌症患者采用叙事方法是否能降低疼痛强度并改善他们的整体幸福感,我们对平均疼痛强度水平至少为5/10的成年癌症患者进行了一项随机、单盲对照试验。234名患者被随机分为三组:(1)叙事组(n = 79),患者每周写一篇关于癌症如何影响其生活的故事,至少20分钟,共持续三周;(2)问卷组(n = 77),患者填写麦吉尔疼痛问卷;(3)对照组(n = 78),患者每周前来就诊,期间接受常规护理。患者在八周内每周用0 - 10分制对疼痛进行评分,并用七点李克特量表对幸福感进行评分。两名评估者独立评估叙事的情感内容。治疗前后所有组的疼痛强度和幸福感相似。亚组分析显示,情感表达丰富的叙事患者比情感表达较少的患者疼痛明显减轻,且幸福感得分更高。需要进一步研究以证明在这种及其他情况下实施叙事医学是否与健康益处相关。