McGoldrick Devon, Neal Claire, Whiteson Myrna
Lance Armstrong Foundation, Austin, Texas 78716, USA.
Pediatr Blood Cancer. 2008 May;50(5 Suppl):1109-11. doi: 10.1002/pbc.21457.
Strong advocacy efforts are vital to ensuring that the unique medical, psychosocial, support and educational needs of teenagers/adolescents and young adults living with cancer are met. Advocacy groups can help bring individuals interested in change together, and provide coordinated education and support services as well as policy analysis and response. Recent improvements in services and treatment indicate the success of organised and professional advocacy in addressing the needs of teenage/adolescent and young adult survivors. The advocacy community can continue to make great advances by joining together to support worldwide recognition of the unique needs of this population, the development of specialist facilities for teenagers/adolescents and young adults, increased awareness of cancer in this population to combat delayed diagnosis and improve access and quality of care, and alleviating the challenges of working with a multidisciplinary health care team.
大力开展宣传倡导工作对于确保满足罹患癌症的青少年及青年的独特医疗、心理社会、支持和教育需求至关重要。宣传倡导团体有助于将有志于推动变革的人士汇聚在一起,并提供协调一致的教育和支持服务以及政策分析与应对措施。近期服务和治疗方面的改善表明,有组织的专业宣传倡导在满足青少年及青年幸存者需求方面取得了成功。宣传倡导界可以继续携手取得巨大进展,支持全球范围内认识到这一人群的独特需求,开发针对青少年及青年的专科设施,提高这一人群对癌症的认识以应对诊断延误问题,并改善医疗服务的可及性和质量,同时缓解与多学科医疗团队合作所面临的挑战。