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青少年和青年癌症患者的认知和倡导。

Awareness and advocacy for adolescents and young adults with cancer.

机构信息

LiveStrong, Austin, Texas 78702, USA.

出版信息

Cancer. 2011 May 15;117(10 Suppl):2311-5. doi: 10.1002/cncr.26055.

Abstract

Increasing the awareness of the clinical and psychosocial needs that are particular to adolescents and young adults (AYA) was a top priority, as was strengthening advocacy efforts to empower and support this group. To date, AYA advocates had some success in generating public awareness and building a solid clinical justification for increased focus on this population. It had been established that the economic burden of their mortality was significant, their cancers were unusual, their medical care was often inadequate, and their outcomes for many cancers had not improved in the past 3 decades. As the awareness and advocacy campaign continued to grow and evolve across the globe, it was an important goal to integrate the efforts of all stakeholders to ensure that it progressed with a single, consensual, focused message identifying a common priority for action. By coordinating the efforts of the scientific, medical, and advocacy communities, it was possible to amplify their separate efforts and activities and more efficiently achieve large-scale change in the world of AYA oncology.

摘要

提高对青少年和青年(AYA)特殊临床和心理社会需求的认识是当务之急,同时还要加强宣传工作,为这一群体赋权并提供支持。迄今为止,AYA 倡导者在提高公众意识和为更加关注这一人群提供坚实的临床依据方面取得了一些成功。已经确定,他们的死亡率造成了重大的经济负担,他们的癌症不同寻常,他们的医疗保健往往不足,而且过去 30 年来,他们许多癌症的治疗效果并没有改善。随着全球范围内的宣传和倡导活动不断发展壮大,将所有利益攸关方的努力整合起来以确保宣传活动能够传达出一个单一的、共识性的、重点突出的信息,确定行动的共同优先事项,这是一个重要目标。通过协调科学、医学和宣传界的努力,可以放大他们各自的努力和活动,更有效地在 AYA 肿瘤学领域实现大规模的变革。

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