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[癌症登记问题——改进数据保护的修订报告法律模式]

[Cancer register problems--modified reporting law model for the improvement of data protection].

作者信息

Schrage R

机构信息

Universitäts-Frauenklinik Tübingen.

出版信息

Offentl Gesundheitswes. 1991 Nov;53(11):746-52.

PMID:1837342
Abstract

The author suggests creating a "Reporting Law Model with Peripheral Part Anonymisation" that preserves the advantages of the reporting law model which are internationally recognised in respect of reliability of registration, on the one hand, while on the other hand the general and individual requirements of sufficient protection of sensitive data are also taken care of. This is achieved by separating the personal data from the factual data at the reporting office level. These data are transmitted separately to the registration offices and their confidential files. It is nevertheless possible to detect any double or multiple reporting and to perform fault finding in respect of personal data. It is also possible to add further data to any patient's case history. This cancer registration model can always cope with the required descriptive and analytical epidemiological tasks that are expected of it. It can be arranged to cover a wide area in a continuous manner without loss of time and without considerable expenditure. Documentation work to be performed by the reporting offices is minimised.

摘要

作者建议创建一种“带有周边部分匿名化的报告法模式”,这种模式一方面保留了报告法模式在登记可靠性方面国际公认的优势,另一方面也兼顾了充分保护敏感数据的一般和个别要求。这是通过在报告办公室层面将个人数据与事实数据分离来实现的。这些数据分别传输到登记办公室及其机密档案中。然而,仍有可能检测到任何重复或多次报告,并对个人数据进行故障排查。也可以在任何患者的病历中添加更多数据。这种癌症登记模式总能应对预期的所需描述性和分析性流行病学任务。它可以连续覆盖广大区域,不会造成时间浪费,也无需大量开支。报告办公室要进行的文档工作被减至最少。

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