Chuacharoen Rattiya, Ritthagol Wipapun, Hunsrisakhun Jaranya, Nilmanat Kittikorn
Prince of Songkhla University, Thailand.
Cleft Palate Craniofac J. 2009 May;46(3):252-7. doi: 10.1597/07-099.1. Epub 2008 Nov 6.
To describe the felt needs of parents who have children from birth to 3 months of age with a cleft lip and palate.
Parents were interviewed using structured and semistructured questions at 1 week and 1, 2, and 3 months after birth.
Fifteen parents, including 12 mothers and three fathers, of patients with cleft lip and palate aged 0 to 3 months were interviewed.
During the first week after birth, the majority of parents needed to know about feeding and surgery. At 1, 2, and 3 months after birth, more information was required, especially on different surgeries during those periods and speech problems. In addition, a number of parents requested funding for every period, and very few had expectations of moral support from health care professionals.
The felt needs expressed in this study changed according to periods of time and mainly concerned feeding, speech problems, and surgery, as well as financial support. The needs of parents, particularly during the transitional period, should be considered as a provision of holistic care for patients with cleft lip and palate and their families.
描述有唇腭裂患儿且孩子年龄在出生至3个月的家长所感受到的需求。
在患儿出生后1周以及1、2、3个月时，采用结构化和半结构化问题对家长进行访谈。
对15名家长进行了访谈，这些家长的孩子年龄在0至3个月，患有唇腭裂，其中包括12名母亲和3名父亲。
在出生后的第一周，大多数家长需要了解喂养和手术方面的信息。在出生后1、2、3个月时，他们需要更多信息，尤其是关于这些时期的不同手术以及言语问题的信息。此外，许多家长在每个阶段都要求提供资金支持，很少有人期望从医护人员那里获得精神支持。
本研究中所表达的家长感受到的需求随时间而变化，主要涉及喂养、言语问题、手术以及经济支持。家长的需求，尤其是在过渡阶段，应被视为为唇腭裂患者及其家庭提供整体护理的一项内容。
