Carvalho Carolina Maria de Lima, Galvão Marli Teresinha Gimeniz
Departamento de Enfermagem, Universidade Federal do Ceará, Fortaleza, CE, Brasil.
Rev Esc Enferm USP. 2008 Mar;42(1):90-7. doi: 10.1590/s0080-62342008000100012.
The objective of this study was to learn how women with Aids cope with daily living after receiving their diagnosis. It is an exploratory, descriptive study with a qualitative approach based on thematic oral history for data collection and analysis. Ten women with Aids were interviewed at a reference hospital in Fortaleza, State of Ceará, from December 2004 to March 2005. A semi-structured questionnaire was used for data collection. The results revealed different ways of coping, related to the fragility of the discovery of the diagnosis, to the need to hide the infection due to the discrimination and prejudice faced by the victims, and to the constant perception of death. In addition, the women expressed feelings such as shame, concern about family, abandonment, solitude, sadness, fear and anxiety. The authors conclude that, two decades after the epidemic broke out, women still face evident difficulties when they experience their infection.
本研究的目的是了解艾滋病女性患者在确诊后如何应对日常生活。这是一项探索性、描述性研究，采用定性研究方法，基于主题口述历史进行数据收集和分析。2004年12月至2005年3月期间，在塞阿拉州福塔莱萨的一家参考医院对10名艾滋病女性患者进行了访谈。采用半结构化问卷进行数据收集。结果显示，由于确诊时的脆弱性、因受害者面临的歧视和偏见而需要隐瞒感染情况以及对死亡的持续认知，她们有不同的应对方式。此外，这些女性还表达了羞耻、对家人的担忧、被抛弃感、孤独、悲伤、恐惧和焦虑等情绪。作者得出结论，在艾滋病疫情爆发二十年后，女性在感染艾滋病时仍面临明显困难。
