Wiegerink Diana J H G, Roebroeck Marij E, Donkervoort Mireille, Cohen-Kettenis Peggy T, Stam Henk J
Department of Rehabilitation, Erasmus MC, University Medical Centre, Rotterdam, The Netherlands.
J Rehabil Med. 2008 Feb;40(2):112-8. doi: 10.2340/16501977-0137.
To describe the social, intimate and sexual relationships of Dutch adolescents with cerebral palsy compared with their able-bodied age mates.
Cross-sectional study.
A total of 103 adolescents with cerebral palsy without severe learning problems aged 16-20 years.
We used a structured interview and questionnaires to assess subject characteristics such as age, type of cerebral palsy, gross motor function and level of education. Main outcome measures on social, intimate and sexual relationships are the Life-Habits questionnaire, the Vineland Adaptive Behaviour Scale, and a structured interview developed for Dutch studies in able-bodied persons and persons with spina bifida. Experienced competence was assessed with the Dutch version of the Self-Perception Profile of Adolescents and the Physical Disability Sexual and Body Esteem Scale. These data were compared with matching reference data, mainly from able-bodied (Dutch) adolescents.
Approximately 30% of the subjects functioned socially below their age level. Adolescents with cerebral palsy find it difficult to develop intimate relationships and they have less sexual experience than their able-bodied age mates.
Although adolescents with cerebral palsy do have social relationships, it is difficult for them to develop intimate relationships. They perceive various barriers, but seem to have a positive self-perception.
描述与健全同龄人相比，荷兰脑瘫青少年的社交、亲密及性关系状况。
横断面研究。
103名年龄在16至20岁、无严重学习问题的脑瘫青少年。
我们采用结构化访谈和问卷来评估研究对象的特征，如年龄、脑瘫类型、粗大运动功能和教育程度。关于社交、亲密及性关系的主要结局指标包括生活习惯问卷、文兰适应行为量表，以及为荷兰针对健全人和脊柱裂患者的研究开发的结构化访谈。通过荷兰版青少年自我认知量表和身体残疾性与身体自尊量表评估所体验到的能力。将这些数据与主要来自健全（荷兰）青少年的匹配参考数据进行比较。
约30%的研究对象在社交方面的表现低于其年龄水平。脑瘫青少年发现很难建立亲密关系，且他们的性经历比健全同龄人少。
尽管脑瘫青少年确实有社交关系，但他们很难建立亲密关系。他们察觉到各种障碍，但似乎有积极的自我认知。
