Donkervoort Mireille, Wiegerink Diana J H G, van Meeteren Jetty, Stam Henk J, Roebroeck Marij E
Department of Rehabilitation Medicine, Erasmus MC, University Medical Centre, Rotterdam, The Netherlands.
Dev Med Child Neurol. 2009 Jan;51(1):53-62. doi: 10.1111/j.1469-8749.2008.03115.x. Epub 2008 Nov 20.
The aim of this study was to investigate the validity of the Rotterdam Transition Profile (RTP) to describe the transition process from childhood to adulthood in young adults with cerebral palsy (CP). Participants were recruited from rehabilitation centres and hospital departments of rehabilitation. In total, 81 young adults (47 males, 34 females) with CP and normal intelligence participated (mean age 20y 5mo [SD 1y 4mo] range 18-22y; 95% spastic CP, 48% hemiplegia, 38% diplegia, 14% quadriplegia; 78% Gross Motor Function Classification System Level I, 83% Manual Ability Classification System Level I). The RTP and the Assessment of Life Habits questionnaire are used to measure transition and functioning in daily activities and participation. Almost all participants were in the transition process or had reached an independent adult lifestyle (ranging from 60-100%, housing 42%). Compared with able-bodied peers, young adults with CP lagged behind in their development in housing (25 vs 36%; p<0.05), employment (33 vs 49%; p<0.05), and intimate relationships (37 vs 76%; p<0.01). Associations were found between the phase of transition and age, parents' level of education, gross motor functioning, manual ability, level of education, and level of functioning in daily activities and participation. The RTP is a valid tool to gain more insight into the transition process, at the individual as well as at group level.
本研究的目的是调查鹿特丹过渡概况（RTP）用于描述脑瘫（CP）青年从儿童期到成年期过渡过程的有效性。参与者从康复中心和医院康复科室招募。共有81名智力正常的CP青年（47名男性，34名女性）参与（平均年龄20岁5个月[标准差1岁4个月]，年龄范围18 - 22岁；95%为痉挛型CP，48%为偏瘫，38%为双瘫，14%为四肢瘫；78%为粗大运动功能分类系统I级，83%为手动能力分类系统I级）。使用RTP和生活习惯评估问卷来测量日常活动和参与方面的过渡及功能情况。几乎所有参与者都处于过渡过程中或已达到独立的成人生活方式（范围为60 - 100%，住房方面为42%）。与健全同龄人相比，CP青年在住房（25%对36%；p<0.05）、就业（33%对49%；p<0.05）和亲密关系（37%对76%；p<0.01）方面的发展滞后。在过渡阶段与年龄、父母教育水平、粗大运动功能、手动能力、教育水平以及日常活动和参与的功能水平之间发现了关联。RTP是一个有效的工具，可在个体和群体层面更深入地了解过渡过程。
