Giacomini Mita, Kenny Nuala, DeJean Deirdre
Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario, Canada.
Health Policy. 2009 Jan;89(1):58-71. doi: 10.1016/j.healthpol.2008.04.010. Epub 2008 Jun 20.
Health policy documents increasingly feature ethics frameworks that outline key guiding principles. It is unclear whether such frameworks function as scaffolding for creating policy, foundations for responding to policy, or mere aesthetic frames to make policies appear ethical. This study investigates the nature and quality of ethics frameworks in Canadian health documents. We reviewed the ethics frameworks of 24 strategic health policy documents published from 1998 to 2005 by Canadian government agencies. We found that frameworks typically appear as a list of principles or values. These elements vary widely across the terminal, procedural, and substantive values of conventional ethics, and many are better characterized as goals than as ethics. No two ethics frameworks matched, despite common topic areas and presumably broadly shared values within the Canadian health system. Elements shared by at least half of the documents include: access, accountability, autonomy, client-centredness, collaboration, efficiency, equity, and evidence. However, common elements are interpreted quite differently. The genesis of the framework and its elements is seldom described. Only one third of the documents relate specific ethical elements to specific policies. In conclusion, we draw on the clinical guidelines literature to propose some features of a robust, coherent and meaningful ethics framework.
卫生政策文件越来越多地采用概述关键指导原则的伦理框架。尚不清楚这些框架是作为制定政策的支架、回应政策的基础,还是仅仅作为使政策显得符合伦理的美观框架。本研究调查了加拿大卫生文件中伦理框架的性质和质量。我们审查了加拿大政府机构在1998年至2005年期间发布的24份战略卫生政策文件的伦理框架。我们发现,这些框架通常表现为一系列原则或价值观。这些要素在传统伦理的终极、程序和实质价值方面差异很大,而且许多要素更适合被描述为目标而非伦理。尽管主题领域相同且加拿大卫生系统内可能有广泛共享的价值观,但没有两个伦理框架是匹配的。至少一半文件共有的要素包括:可及性、问责制、自主性、以客户为中心、协作、效率、公平和证据。然而,对共同要素的解释却大不相同。很少描述框架及其要素的起源。只有三分之一的文件将特定的伦理要素与特定政策联系起来。总之,我们借鉴临床指南文献,提出一个健全、连贯且有意义的伦理框架的一些特征。