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拉丁美洲的姑息治疗研究:威尼斯宣言范围内的一项调查结果

Palliative care research in Latin America: results of a survey within the scope of the Declaration of Venice.

作者信息

Wenk Roberto, De Lima Liliana, Eisenchlas Jorge

机构信息

Programa Argentino de Medicina Paliativa-Fundación FEMEBA, Buenos Aires, Argentina.

出版信息

J Palliat Med. 2008 Jun;11(5):717-22. doi: 10.1089/jpm.2007.0212.

DOI:10.1089/jpm.2007.0212
PMID:18588403
Abstract

BACKGROUND

In recent years, there has been an increase in the amount of palliative care research in developing countries. However, it is still very limited in the developing regions of the world, including Latin America.

OBJECTIVE

To determine the current status of palliative care research in Latin America.

DESIGN

A survey was developed in Spanish and translated to Portuguese. Questions included demographic characteristics and specific research issues. Distribution was done through e-mail and personal hand-outs.

MEASUREMENTS

Data were collected and analyzed using descriptive statistics and multivariate analysis.

RESULTS

Two hundred sixty-three surveys (17.5% response rate) were received from 17 countries. A small number (10%, n = 263) reported participating in research within the last 5 years. Slightly over half of them received some training and had access to mentorship and guidance from an expert: multivariate analysis showed that training in research (odds ratio [OR] 3.46; 95% confidence interval [CI] 1.71-6.98) and support from an expert (OR 3.03; 95% CI 1.51-6.10) were positive predictor factors, even when adjusted for gender, age, years since graduation, and years working in palliative care. Barriers to conduct research most frequently cited were: lack of funding, insufficient knowledge and expertise, and lack of interest (54%, 21%, and 15%, respectively).

CONCLUSIONS

Palliative care research in Latin America is very limited. Regional palliative care teams must adopt and implement systematic research in their practice to improve, guarantee, and sustain quality. Changes in policy, education, and allocation of funds are needed to guarantee the development of research in Latin America.

摘要

背景

近年来,发展中国家的姑息治疗研究数量有所增加。然而,在世界上的发展中地区,包括拉丁美洲,此类研究仍然非常有限。

目的

确定拉丁美洲姑息治疗研究的现状。

设计

设计了一份西班牙语调查问卷,并翻译成葡萄牙语。问题包括人口统计学特征和具体研究问题。通过电子邮件和个人发放进行分发。

测量

使用描述性统计和多变量分析收集和分析数据。

结果

从17个国家收到了263份调查问卷(回复率为17.5%)。少数(10%,n = 263)报告在过去5年内参与过研究。其中略超过一半的人接受过一些培训,并有机会获得专家的指导:多变量分析表明,研究培训(优势比[OR] 3.46;95%置信区间[CI] 1.71 - 6.98)和专家支持(OR 3.03;95% CI 1.51 - 6.10)是积极的预测因素,即使在对性别、年龄、毕业年限和姑息治疗工作年限进行调整后也是如此。开展研究最常提到的障碍是:资金短缺、知识和专业技能不足以及缺乏兴趣(分别为54%、21%和15%)。

结论

拉丁美洲的姑息治疗研究非常有限。区域姑息治疗团队必须在其实践中采用并实施系统研究,以改善、保证和维持质量。需要在政策、教育和资金分配方面做出改变,以保证拉丁美洲研究的发展。

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