Hari D, Mark Z, Bharati D, Khadka P
B&B Hospital, Kathmandu, Nepal.
Kathmandu Univ Med J (KUMJ). 2007 Oct-Dec;5(4):591-5.
To ascertain patients' attitude towards concept of right to know about Terminal cancer.
Questionnaire was constructed that included demographic and clinical information distributed to 500 OPD patients and interviewed them at Patan Hospital in Kathmandu, Nepal.
500 OPD patients completed questionnaire along with interview. 63.4% of patients wanted to know diagnosis, 41.2% wanted to know about prognosis and 13% wanted to make own end of life decision-making about the terminal cancer. Similarly, 89% of patients wanted to tell diagnosis to their family members and 83% wanted to tell prognosis. The view for disclosure rate is different when one is as patient and as family member (63.4% versus 34.4%). Elderly people are more likely to know the prognosis and educated and Brahmin people are more likely to make their own end of life decision-making.
Findings of the study indicated that most patients want to be informed about their terminal illness. Physicians should realize that patients and family units might differ in their attitude therefore; truth telling should depend on what the patients want to know and are prepared to know.
确定患者对晚期癌症知情权概念的态度。
编制了包含人口统计学和临床信息的问卷，分发给500名门诊患者，并在尼泊尔加德满都的帕坦医院对他们进行访谈。
500名门诊患者完成了问卷及访谈。63.4%的患者想知道诊断结果，41.2%的患者想知道预后情况，13%的患者想就晚期癌症做出自己的临终决策。同样，89%的患者想将诊断结果告知家人，83%的患者想告知预后情况。作为患者和作为家属时的信息披露率观点不同（63.4%对34.4%）。老年人更有可能了解预后情况，受过教育的人和婆罗门更有可能做出自己的临终决策。
研究结果表明，大多数患者希望了解自己的晚期疾病情况。因此，医生应认识到患者和家属在态度上可能存在差异；告知真相应取决于患者想知道什么以及准备知道什么。
