van't Veer Toos, Meester Hanneke, Poenaru Dan, Kogei Agnes, Augenstein Kimberly, Bransford Richard
Department of Surgery, BethanyKids at Kijabe Hospital, Kijabe, Kenya.
Trop Doct. 2008 Jul;38(3):160-2. doi: 10.1258/td.2007.070053.
Spina bifida (SB) affects children worldwide. Studies from developed nations have explored the impact of SB on the quality of life of children and their parents. However, there are no such studies available from developing countries. We have therefore undertaken to document the impact of the disability on the families of affected children in Kenya. A questionnaire was administered to 40 mothers and their children, who were receiving treatment for SB at our institution. The results of this study should indicate where community and governmental resources and educational efforts for the disabled should be directed.
脊柱裂（SB）影响着全球的儿童。发达国家的研究探讨了脊柱裂对儿童及其父母生活质量的影响。然而，发展中国家尚无此类研究。因此，我们着手记录这种残疾对肯尼亚受影响儿童家庭的影响。我们向在我们机构接受脊柱裂治疗的40位母亲及其子女发放了问卷。这项研究的结果应能表明社区和政府针对残疾人的资源及教育工作应指向何处。
